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Research ArticleOriginal Research

Suffering in Silence: Reasons for Not Disclosing Depression in Primary Care

Robert A. Bell, Peter Franks, Paul R. Duberstein, Ronald M. Epstein, Mitchell D. Feldman, Erik Fernandez y Garcia and Richard L. Kravitz
The Annals of Family Medicine September 2011, 9 (5) 439-446; DOI: https://doi.org/10.1370/afm.1277
Robert A. Bell
PhD
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  • For correspondence: rabell@ucdavis.edu
Peter Franks
MD
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Paul R. Duberstein
PhD
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Ronald M. Epstein
MD
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Mitchell D. Feldman
MD, MPhil
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Erik Fernandez y Garcia
MD, MPH
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Richard L. Kravitz
MD, MSPH
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Article Figures & Data

Tables

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    • View popup
    Table 1

    Demographic and Health Characteristics of the Sample (N = 1,054)

    UnweightedWeighted
    Respondent Characteristic%nPopulation Estimate (%)
    Demographic
    Female67.771458.5
    Age, y
     18–294.54715.1
     30–399.29714.3
     40–4919.620724.2
     50–5922.924117.8
     >6043.846128.6
    White race90.595485.3
    Culturally or ethnically Hispanic12.713424.5
    Education
     High school or less18.119125.1
     Some college/technical school29.631227.6
     College graduate52.255047.3
    Household income
     <$20,00015.616412.7
     $20,000–$34,99913.914612.6
     $35,000–$49,99912.313010.7
     $50,000–$74,99916.217117.9
     $75,000–$100,00017.318218.1
     >$100,00022.123326.1
     Unsure/declined to answer2.7281.9
    Employment status
     Employed for wages35.937845.6
     Self-employed11.612211.2
     Out of work5.8615.7
     Homemaker8.6919.7
     Student2.1224.8
     Retired27.929418.8
     Unable to work8.2864.3
    Relational status
     Married50.052760.7
     Not married but partnered4.8516.9
     Separated or divorced21.422611.8
     Widow/widower11.81246.4
     Never married12.012614.2
    Health situation
    Ever been treated for depression45.147529.5
    Currently under treatment for depression21.622816.3
    Family history of depression52.755543.0
    General health perception
     Excellent17.918917.9
     Very good38.540637.1
     Good27.028529.5
     Fair12.012612.2
     Poor4.6483.4
    Have regular source of care88.092881.3
    Have health insurance93.798891.2
    • View popup
    Table 2

    Unweighted and Weighted Distribution of Reasons for Not Seeking Help

    Reason for Nondisclosure (Item Label)ResponseUnweighted AnalysisWeighted Estimates
    %n%95% CI
    The doctor might put me on medicines that I’d rather not take (medication aversion)Does not apply57.360254.649.9–59.2
    Applies a little23.424622.519.1–26.3
    Applies a lot19.220222.918.8–27.5
    I do not feel it is my doctor’s job to deal with emotional problems (not doctor’s job)Does not apply73.377371.066.4–75.2
    Applies a little14.114913.410.9–16.5
    Applies a lot12.513215.612.0–20.0
    My medical records might be seen by others such as an employer (medical records)Does not apply71.575370.366.1–74.3
    Applies a little13.213914.311.4–17.7
    Applies a lot15.316115.412.5–18.9
    The doctor might send me to a counselor, psychologist or social worker (counseling)Does not apply75.879774.069.6–78.0
    Applies a little11.812412.39.8–15.4
    Applies a lot12.413013.710.4–17.7
    The doctor might send me to a psychiatrist (psychiatrist)Does not apply76.080073.969.4–78.0
    Applies a little12.112712.710.0–15.9
    Applies a lot11.912513.410.1–17.5
    I would not want to be considered a ‘psychiatric patient’ (psychiatric patient)Does not apply69.873470.566.1–74.6
    Applies a little17.418317.714.4–21.6
    Applies a lot12.813511.89.2–15.0
    I would not want to tell private information to my doctor (private information)Does not apply84.388880.275.7–84.0
    Applies a little9.810310.78.0–14.2
    Applies a lot6.0639.16.3–12.9
    I might cry or become too emotional during the visit (emotional control)Does not apply77.381478.073.8–81.6
    Applies a little15.516314.411.3–18.2
    Applies a lot7.2767.65.6–10.4
    I would not know how to bring up the topic of depression to my doctor (topic introduction)Does not apply82.787080.576.3–84.1
    Applies a little11.512113.110.2–16.7
    Applies a lot5.8616.44.2–9.6
    I would not want to distract the doctor from taking care of my physical health problems (distraction of doctor)Does not apply86.791486.783.2–89.7
    Applies a little7.3778.05.6–11.3
    Applies a lot6.0635.33.8–7.3
    The doctor might think less of me if I brought up my depression symptoms (loss of esteem)Does not apply86.791487.283.7–90.0
    Applies a little9.3989.36.8–12.6
    Applies a lot4.0423.62.3–5.4
    • CI=confidence interval.

    • Note: Reasons have been sorted by percentage of the population estimated to believe the reason applies a lot to them.

    • View popup
    Table 3

    Unweighted Percentage of Respondents With vs Without a History of Depression Treatment Who Reported That a Reason for Not Seeking Depression Care Applies a Lot

    Reason for NondisclosureaHistory of Treatmentb (n=475)No History of Treatmentb (n=579)P Valuec
    %n%n
    Medication aversion15.67422.2128.009
    Not doctor’s job10.14814.584.040
    Medical records17.98513.176.041
    Counseling referral11.45413.176.423
    Psychiatrist referral9.54513.980.036
    Psychiatric patient13.76512.170.511
    Private information4.4217.342.072
    Emotional control9.7465.230.007
    Topic introduction5.7275.9341.00
    Distract of doctor5.9286.0351.00
    Loss of esteem4.8233.319.258
    • Note: Because of nonresponse, the number for analysis for each reason ranges from 1,050 to 1,054.

    • ↵a Refer to Table 2 for item wording.

    • ↵b Respondents were classified into the history (n = 475) or no history (n = 579) groups based on their answer to the question, “Have you, personally, ever been treated for depression by a health care provider? A health care provider could be a medical doctor or a mental health professional, such as a psychiatrist, psychologist, social worker, or counselor.”

    • ↵c Probability values are based on the χ2 test with continuity correction.

    • View popup
    Table 4

    Unweighted Percentage of Respondents Without vs With Moderate or Severe Depressive Symptoms Who Reported That a Reason for Not Seeking Depression Care Applies a Lot

    Reason for NondisclosureaNo or Mild Symptomsb (n=899)Moderate or Severe Symptomsb (n=153)P Valueb,c
    %n%n
    Medication aversion17.715927.842.004
    Not doctor’s job11.810617.026.073
    Medical records13.612225.539.001
    Counseling referral11.310118.328.014
    Psychiatrist referral10.89718.328.008
    Psychiatric patient11.610420.331.003
    Private information4.84312.419.001
    Emotional control4.94420.932.001
    Topic introduction4.03616.525.001
    Distract of doctor4.54014.422.001
    Loss of esteem2.62312.419.001
    • PHQ- 9 = 9-item Patient Health Questionnaire.

    • Note: Because of nonresponse, the number for analysis for each reason ranges from 1,048 to 1,052.

    • ↵a Refer to Table 2 for item wording.

    • ↵b Respondents with a PHQ-9 score of 0–9 were assigned to the no or mild depressive symptoms group; respondents with a PHQ-9 score of 10–27 were assigned to the moderate/severe depressive symptoms group.

    • ↵c Probability values are based on the χ2 test with continuity correction.

    • View popup
    Table 5

    Weighted Multiple Regression Analyses Predicting Perceived Barriers to Disclosing Depression to One’s Primary Care Physician

    PredictorsCoefficient95% CI
    Demographic variables
    Age (in years).001−.001 to .003
    Female.080a.014 to .146
    Married or partnered−.003−.072 to .065
    Nonwhite race.025−.081 to .130
    Hispanic.129b.033 to .244
    Education
     High school or less——
     Some college/technical−.120a−.223 to −.016
     College graduate−.058−.163 to .047
    Income
     $0–$34,999——
     $35,000–$75,000−.173c−.276 to −.069
     >$75,000−.120a−.230 to −.010
    Health/depression variables
    General health perception.017−.021 to .055
    Depression symptoms (PHQ-9).019c.009 to .029
    Past diagnosis.035−.035 to 1.05
    Family history−.078a−.140 to −.015
    Stigma.136c.092 to .181
    Biomedical causes−.005−.071 to .061
    Psychosocial causes−.011−.057 to .035
    Controllable.074b.024 to .123
    Timeline (usually >1 y).040−.026 to .105
    Health insurance−.093−.266 to .079
    Regular source of care−.024−.134 to .086
    • PHQ-9 = 9-item Patient Health Questionnaire.

    • Note: Because of nonresponse, n = 982 for this analysis.

    • ↵a P <.05.

    • ↵b P <.01.

    • ↵c P <.0013.

Additional Files

  • Tables
  • The Article in Brief

    Suffering in Silence: Reasons for Not Disclosing Depression in Primary Care

    Robert A. Bell , and colleagues

    Background One-fourth of primary care patients with major depressive disorder do not have their condition diagnosed. This study explores reasons why patients do not disclose depression to their primary care doctors.

    What This Study Found Many adults have beliefs that inhibit them from disclosing symptoms of depression to their primary care doctor. In a survey of 1,054 adults, 43 percent of patients report one or more reasons for not talking to a primary care doctor about their depression. The most frequently cited reason is concern that the doctor will recommend antidepressants. Other reported barriers include the belief that it is not the primary care physician�s job to deal with emotional issues, concerns about medical record confidentiality, fear of referral to a counselor or psychiatrist, and fear of being labeled a psychiatric patient.

    Implications

    • Those who most subscribe to potential reasons for not talking to a primary care physicians about their depression tend to be those who have the greatest potential benefit from such conversations: individuals with moderate to severe depressive symptoms.
    • The authors call for the development of office-based interventions that address these patients' concerns and encourage patients with depression symptoms to begin a conversation with their doctors.
  • ANNALS JOURNAL CLUB:

    Sep/Oct 2011

    Patients' Reasons for Not Disclosing Depression

    The Annals of Family Medicine encourages readers to develop a learning community of those seeking to improve health care and health through enhanced primary care. You can participate by conducting a RADICAL journal club and sharing the results of your discussions in the Annals online discussion for the featured articles. RADICAL is an acronym for Read, Ask, Discuss, Inquire, Collaborate, Act, and Learn. The word radical also indicates the need to engage diverse participants in thinking critically about important issues affecting primary care and then acting on those discussions.1

    HOW IT WORKS

    In each issue, the Annals selects an article or articles and provides discussion tips and questions. We encourage you to take a RADICAL approach to these materials and to post a summary of your conversation in our online discussion. (Open the article online and click on "TRACK Comments: Submit a response.") You can find discussion questions and more information online at: http://www.AnnFamMed.org/AJC/.

    CURRENT SELECTION

    Article for Discussion

    • Bell RA, Franks P, Duberstein PR, et al. Suffering in silence: reasons for not disclosing depression in primary care. Ann Fam Med. 2011;9(5):439-446.

    Discussion Tips

    Depression can be challenging to detect, and it is easy to blame patients for framing their visits in ways that make detection more difficult. More challenging is to try to understand depression from the patients� point of view and to consider the effects of our own behavior in creating an environment in which patients are comfortable sharing their deep concerns, even if those concerns challenge our medical model. This issue�s journal club article gives us data to inform our efforts to create an open environment for patients to share depressive symptoms.

    Discussion Questions

    • What questions are asked by this study and why does it matter? How was theory used to frame the questions?
    • How does this study advance beyond previous research and clinical practice on this topic?
    • How strong is the study design for answering the question?
    • To what degree can the findings be accounted for by:
    1. How patients were selected, excluded, or lost to follow-up?
    2. How the main variables were measured?
    3. Confounding (false attribution of causality because 2 variables discovered to be associated actually are associated with a 3rd factor)?
    4. Chance?
    5. How the findings were interpreted?
  • How comparable is the study sample to similar patients in your practice? What is your judgment about the transportability of the findings?
  • What are the main study findings?
  • What reflections do you have on (1) the factors that patients say affect their disclosure of depressive symptoms, and (2) the characteristics of patients less likely to disclose depression? How might our/your approach to patients in general, and to the diagnosis and treatment of depression in particular, help create an environment in which patients feel safe disclosing depressive symptoms?
  • How might this study change your practice? Policy? Education? Research?
  • Could patients in your practice be engaged in interpreting or helping your practice to use the findings? How?
  • What are the next steps in interpreting or applying the findings to change practice?
  • What researchable questions remain?
  • References

    1. Stange KC, Miller WL, McLellan LA, et al. Annals Journal Club: It�s time to get RADICAL. Ann Fam Med. 2006;4(3):196-197. http://annfammed.org/cgi/content/full/4/3/196.
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Suffering in Silence: Reasons for Not Disclosing Depression in Primary Care
Robert A. Bell, Peter Franks, Paul R. Duberstein, Ronald M. Epstein, Mitchell D. Feldman, Erik Fernandez y Garcia, Richard L. Kravitz
The Annals of Family Medicine Sep 2011, 9 (5) 439-446; DOI: 10.1370/afm.1277

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Suffering in Silence: Reasons for Not Disclosing Depression in Primary Care
Robert A. Bell, Peter Franks, Paul R. Duberstein, Ronald M. Epstein, Mitchell D. Feldman, Erik Fernandez y Garcia, Richard L. Kravitz
The Annals of Family Medicine Sep 2011, 9 (5) 439-446; DOI: 10.1370/afm.1277
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