Table 2.

Iteration 2: Incorporating Variables From Record Abstraction

Quantitative Questions and Data	Qualitative Questions and Data
Role functioning Keep up with household tasks. Scale 0-10; not at all–usual Confidence in ability to care for child. Scale 0-10; no confidence–very confident Independence. Scale 0-10; very clingy–as usual Hospital LOS Readmission Demographics Age Gender Ethnicity Episode characteristics Clinical dx or MDI diagnosed? (URI, UTI, fungal, C diff, BSI, typhlitis, etc)	What is it like caring for your child when they are ill? What are the extra resources and help required to keep your family functioning during fever neutropenia episodes? Risk stratification: High or low risk at presentation High or low risk after 1 night’s observation Type of outpatient FU (VR vs in-person)
Emotional functioning Level of concern about child’s condition. Scale 0-10; very anxious–very calm Confidence in ability to care for child. Scale 0-10; no confidence–very confident Satisfaction with overall care. Scale 0-10; very unhappy–very happy Mood. Scale 0-10; very upset–very happy Oncologic history Primary diagnosis Date of diagnosis Phase of therapy Disease status Demographics Age Gender Ethnicity Episode characteristics Clinical dx or MDI diagnosed? (URI, UTI, fungal, C diff, BSI, typhlitis, etc)	How has your child’s illness emotionally affected you? Discharge/follow-up description: Type of follow-up (telephone, video, clinic) Who did follow-up visits (RN, NP, fellow, attending)? Frequency RN, parent, clinician concerns documented
Cognitive functioning Interest or concentration. Scale 0-10; not as usual–as usual Sleep at night. Scale 0-10; much worse–as usual Activity or energy level. Scale 0-10; not at all–most of the time PICU admission LOS ≤3 days Acute respiratory failure present Need for advanced airway NIPPV or HFNC? Need for pressor support Is activity level affected by persistent N/V, typhlitis, need for IV narcotics, longer-length antibiotics, LOS?	Will you describe how school and work have been affected by your child’s illness? PICU admission: Related to FN Noninfectious concern Disease status Evidence of shock Risk stratification: High or low risk at presentation High or low risk after 1 night’s observation
Social functioning Spend time with partner. Scale 0-10; not at all–usual Spend time with other children. Scale 0-10; not at all–usual Hospital LOS Readmission	How has your child’s illness affected members in your family? Type of outpatient FU (VR vs in-person)
Symptoms Appetite. Scale 0-10; very poor–very good Persistent N/V or C diff present?	How are symptoms different when you are at home versus in the hospital? Evidence of mucositis or typhlitis? Severe pain with IV narcotic requirement
Global Well-being. Scale 0-10; very poor–very good Hospital LOS Readmission PICU admission, LOS Oncologic history Primary diagnosis Disease status	In your opinion, what value listed above is most important to you? Is there anything else you would like to share about caring for your child during fever neutropenia? Risk stratification: High or low risk at presentation High or low risk after 1 night’s observation

BSI = bloodstream infection; C diff = Clostridioides difficile; dx = diagnosis; FN = febrile neutropenia; FU = follow-up; HFNC = high-flow nasal cannula; IV = intravenous; MDI = microbiologically documented infection; NIPPV = noninvasive positive pressure ventilation; NP = nurse practitioner; N/V = nausea/vomiting; PICU = pediatric intensive care unit; RN = registered nurse; URI = upper respiratory infection; UTI = urinary tract infection; VR = virtual.
Note: Table footnotes have been added to improve clarity and readability. They were notably absent in the original tables.