Table 2

Suggestions From Participants About Preparation and Communication

ThemeParticipant Recommendation
Give details in advance about logistics of testIt’s important that I know ahead of time instead of a week later.
And explain that it’s going to hurt but it’s to protect you….Because people really don’t know.
Listen attentively to the patient’s concerns and address themAnd don’t interrupt and wait until they’re finished talking, what they’re saying… ‘Cause some doctors, they can just sit there and listen, then nod some and when you walk out of the room, it’s like they didn’t hear nothing.
Be, um, more persistent, be um persistent with your patients and everything to make sure you know they have everything they need.
Tailor information to patient’s level of understanding; show, don’t tell[Interviewer]: Like a dummy to show it on? M: Yes, exactly I mean you have to show it on a dummy where they have the um…. Interviewer: Lump? M: Lump! The lump… maybe I’d understand it more, I’d get it more, but if she says push here or here, do you think I’m gonna understand? I’m not gonna understand it.
I think a great way for doctors to understand like how to communicate with a person with a disability is to strike up a casual conversation first. And for them to judge by the conversation how they should talk to them in medical terms.