Table 1.

Types of Community Participation in Research Reported by Practice-Based Research Neworks (N = 46)

Type of Community InvolvementPBRNs Reporting This Activity N (%)
PBRN = practice-based research network.
No community involvement22 (48)
Input through patient surveys1 (2)
Study-specific focus groups1 (2)
Community membership in existing PBRN board or council11 (24)
    Provides review and feedback only3 (7)
    Participates in generating research ideas, analyzing data1 (2)
    Conducts their own research project2 (4)
Community involvement reported but activities unknown5 (11)
Plans for increasing community member involvement13 (28)