Table 2

Patient Experience of Continuity of Care: Subscale Description and Item Provenance

DimensionResponse FormatItem ContentItem Inspiration
Pertaining to main health care clinician (management, relational)
Coordinator role (5 items)Evaluative (hardly at all to totally)Assessment of how well coordinator knows all health care needs, maintains regular contact with the patient, contacts other clinicians, and helps patient getting care from other clinicians (only answered by those with identified coordinator)ACSS-MH10
2 new
Comprehensive knowledge of patient (4 items)Evaluative (hardly at all to totally)How much doctor takes into account the patients whole medical history, worries about health, responsibilities at home and personal values? (only answered by those with a personal doctor)PCAS13
Confidence and partnership (3 items)Evaluative (hardly at all to totally)Importance given to patient ideas about care, comfort in discussion of sensitive issues, confidence that doctor will look after patient (only answered by those with a personal doctor)PCAT-ae14
2 New
Pertaining to several clinicians or team (team relational, management, informational)
Confidence in team (2 items)Evaluative (hardly at all to totally)Assessment of how well the patient feels known and can count on members at regular clinic.ACSS-MH10
Role clarity and coordination (3 items each, (2 subscales)Reporting (never to almost always)Frequency of clinicians not working well together or giving the patient conflicting information (asked in reference to clinicians in own clinic and separately, between clinics, and elsewhere)CPCQ26
1 New
Information gap between clinicians (6 items)Reporting (never, sometimes, oftenFrequency of information transfer problems: clinicians do not know recent history, results of recent tests, or changes made by other clinicians; patient has to provide information, repeat tests, or repeat informationVANOCSS18
1 New
Pertaining to engaging patient as care partner (support to management, informational)
Evidence of a care plan (7 items)Reporting (yes, no, not applicable)Patient recall of negotiation of health care goals and self-management, being explained about the impact of health condition, how and why to do treatment, required monitoring, expected health care trajectoryACSS-MH10
5 New
Self-management information pro- vided (4 items)Evaluative (hardly at all to a lot)Assessment of information received from doctors and nurses in terms of helpfulness for staying healthy, doing treatments at home, and coping with minor complications (not receiving needed information most negative score)CTM6
  • ACES = Ambulatory Care Experiences Survey; ACSS-MH = Alberta Continuity of Services Scale for Mental Health; CPCQ = Client Perceptions of Coordination Questionnaire; CTM = Care Transitions Measure; DCCS = Diabetes Continuity of Care Scale; HCCQ = Health Care Communication Questionnaire; PACIC = Patient Assessment of Care for Chronic Conditions; PCAT-ae = Primary Care Assessment Tool-Adult Edition; PCAS = Primary Care Assessment Survey; PCCQ = Patient Continuity of Care Questionnaire; VANOCSS = Veterans Affairs National Outpatient Customer Satisfaction Survey.