American Hospital Association and The Picker Institute29 1997, USA | Focus groups (n = 31) and Picker Institute patient surveys | Adult patients (public perceptions of health care and hospitals in 12 different states in the United States |
Burkey et al30 1997, UK | In-depth semistructured interviews (n = 43); follow-up with 37 at 6 months | Patients followed at 5 general medical outpatient clinics (3 or more attendances) and discharged in April–May 1995 |
Adewuyi-Dalton et al31 1998, UK | Semistructured interviews about routine hospital follow-up (n=113) | Women with breast cancer in remission discharged to usual care |
Armitage et al32 1998, Australia | Telephone semistructured interviews (n = 29) at home (5 to 36 days after discharge) about discharge planning | Patients (inpatient >2 days) discharged from 3 medical wards of a large tertiary referral teaching hospital |
Gallagher et al33 1999, Canada | 10 Individual semistructured interviews | Seniors from across Canada who use 2 or more health services, recruited in their community by Advisory Council members, themselves seniors |
Wallace et al34 1999, UK | Focus groups (n = 3) | Women with epilepsy recruited from tertiary hospital’s Epilepsy Clinic and through the epilepsy support group |
Wallace et al35 1999, Canada | Focus groups (n = 9) with patients and family members separately (n = 41) | Psychiatry patients discharged from inpatient unit and still being treated in the outpatient department, and family members |
McCourt et al36 2000, UK | Semistructured narrative individual interviews (n=20) | Visible minority women, one-half receiving caseload midwifery care and one-half conventional maternity care (ethnic categories: black Caribbean and African, South and East Asian, and Mediterranean or Middle Eastern) |
Radwin et al37 2000, USA | Interviews about quality nursing care with a semistructured schedule (n = 22) | Oncology patients in outpatient treatment at an urban medical center (19 hospitalized for cancer treatment at least once) |
Bakker et al38 2001, Canada | Interviews relatively unstructured in patient’ home (n=28) | Patients receiving chemotherapy at 1 of the 13 community chemotherapy clinics after medical oncology consultation at regional cancer center |
Kai et al5 2001, UK | Individual in-depth interviews (n=34) | Patients with enduring mental ill health registered with 4 general practices referred to 2 consultant psychiatrist-led community mental health teams at a local hospital inpatient unit |
Bain et al39 2002, Scotland | Focus groups (n = 4), 22 patients with colorectal cancer (and 10 of their relatives) and in-depth interviews conducted in the participants homes (n = 39 patients and 24 relatives) | Oncology and surgical outpatient clinics for colorectal cancer and from chemotherapy outpatients and in-patients. North and Northeast of Scotland |
Harrison et al40 2002, Canada | In-depth personal interviews and short telephone interviews to understand coordination of care | Patients (n = 26) discharged from an acute care hospital into the community with home care support, (n = 5 urban and 1 rural) |
McKinney et al41 2002, UK | Phenomenological approach (interpretative Heideggerian approach, n = 6) | Patients (n = 6) who have been transferred from intensive care to general ward; before and after transfer from intensive care unit |
Murray et al42 2002, UK | In-depth interviews every 3 months for 1 year with patients and their main caregiver plus professional identified as key by patients. Two multidisciplinary focus groups. Postbereavement interviews with caregivers and key professionals | Patients with inoperable lung cancer (n = 20) and patients with advanced cardiac failure (n = 20) receiving community terminal care, with caregivers and key professional carers |
Osse et al43 2002, The Netherlands | In-depth interviews with patients (n = 9) and relatives (n = 7) followed by interviews using a checklist (n = 31 and 15) | Adults cancer patients with metastatic disease in a palliative phase of cancer. Patients were selected through randomly chosen general practitioners and through patient organizations |
Kroll et al44 2003, USA | Semistructured telephone interviews (n = 30) | People with cerebral palsy, multiple sclerosis, or spinal cord injury, with reported problems of health insurance coverage and accessibility; across all services |
O’Connell et al45 2003, Australia | Focus groups (n = 12), mixed groups about transition from pediatric to adult care | Young adults (aged 16–25 years) with a disability, their caregivers, and health care service clinicians |
Tarrant et al46 2003, UK | Narrative-based individual interviews, “framework” approach. Followed by focus groups with patients (n = 4) and with health professionals (n = 4) | Adult patients (n = 40), practitioners (n = 13), practice and community nurses (n = 10), and practice administrative staff (n = 6) in 6 general practices in Leicestershire |
Ware et al14 2003, USA | Ethnographic study using data collected through observation and open-ended interviewing | Severely mentally ill persons (n = 9) and their health professional, in public mental health services, Boston, Massachusetts |
Arthur et al47 2004, UK | Semistructured interviews (n = 10) | Rheumatology outpatients using antirheumatic drugs |
Dolovich et al9 2004, Canada | Focus groups with patients (n = 7) and health care clinicians (n = 2), approximately one-half being physicians | Patients with a diabetes diagnosis registered in a multidisciplinary health service organization in Ontario |
Infante et al4 2004, Australia | Focus groups (n = 12) | Health consumers with chronic illnesses, followed in general practice |
Miles et al48 2004, UK | Single semistructured interviews (n = 7) about transition | Adolescent patients human immunodeficiency virus (HIV) infection transferred from hospital pediatric unit to the adult HIV outpatient center |
Williams et al49 2004, Australia | Colaizzi’s phenomenological method using single semistructured interviews (n = 12) | Patients with multiple chronic illnesses for approximately 5 years, admitted to acute care hospital from home, during hospital care of at least 4 days’ duration |
Woodward et al50 2004, Canada | Interviews home care case managers (n = 13), home service clinicians (n = 19), clients (n = 25), and their caregivers (n = 5) and 3 physicians | Home care cases with different entry mechanisms to home care (from hospital or from the community) and different availability of family caregivers |
Pâquet et al51 2005, Canada | Focus groups (n = 3) from rural, semirural and urban milieu, about cardiac rehabilitation programs | Adults hospitalized for a cardiovascular event: myocardial infarction, angina, or percutaneous angioplasty |
Alazri et al6 2006, UK | Focus groups (n = 12) about primary diabetes care | Patients with type 2 diabetes from 2 rural and 5 urban practices in Leeds of different sizes |
Fraenkel et al52 2006, UK and USA | Focus groups (n = 8, 4 per setting) | Patients with hepatitis C attending the outpatient liver clinics in 2 different settings |
McCurdy et al53 2006, Canada | Qualitative case study approach, 4 focus groups with young adults about pediatric to adult care transition | Patients aged 19–24 years, after transfer at 18 years from pediatric to adult center after kidney, liver, or heart transplant |
Naithani et al54 2006, UK | In-depth semistructured interviews in patient’ home | Type 2 diabetic patients from general practices in 2 inner London boroughs with young, mobile, and ethnically diverse populations and high level of deprivation |
Hildingsson et al3 2007, Sweden | Written response to 1 open-ended question about maternity services | Women seen in a Swedish prenatal clinic |
Lester et al55 2007, UK | Focus groups (n = 18) (separate with patients, physicians, practice nurses) | Patients with broadly defined serious mental illness in 6 primary care trusts, West Midlands |
Burns et al13 2007, UK | In-depth interviews with 20 psychotic patients and 11 nonpsychotic patients | Patients with mental illness (and their caregivers) in 2 London mental health National Health Service accessing a variety of health and social services |