Table 4

Meta-Analysis of Needs of Patients and Their Caregivers

Categories of Need	No. of Studies	Pooled Proportion (95% CI)	Variation Across Studies (I²), %	Test of Heterogeneity (Q²), P value
Needs of the patient-caregiver dyad^a
Early diagnosis^80,88,89	3	0.58 (0.43–0.72)	80.0	.007
Education/counseling on disease^{79,80,82,89,92,94–96}	8	0.50 (0.35–0.65)	97.3	<0.001
Needs of the patient^b
Meaningful activities^74,79,85	3	0.36 (0.05–0.85)	97.8	<0.001
Assistance with ADL/IADL^74,79,85	3	0.22 (0.05–0.59)	95.5	<0.001
Needs of the caregiver^a
In-home support^75,83,95	3	0.23 (0.17–0.31)	17.7	0.30

ADL = activities of daily living; IADL = instrumental activities of daily living
↵a Needs reported by caregivers.
↵b Needs reported by patients.