Trial and error in my quest to be a partner in my health care: A patient's story
Section snippets
Authors' note
Presented here is the personal narrative of a cancer patient named Roxanne Goeltz, who has become quietly—but very—determined to be an actual, functioning, decision-making partner in the treatment of her disease, a thymoma that was first discovered in her chest cavity in July 2000. Keep in mind two factors as you read her story. First, Ms. Goeltz's brother (Mike) died in a hospital from what the health care literature would call an “unexpected adverse outcome” about 6 months before her journey
Hatlie
A fearful stranger to the healthcare sector when she became a frequent user 2 years ago, Goeltz clearly is now a sophisticated and creative partner. She is fully engaged in decision-making and holds the decisions made as her own. Physicians often worry that their patients don't fully consent to the treatment given them because they don't fully understand the risks. This is often a factor in malpractice litigation. Goeltz's healers don't have that worry.
When it comes to the complicated process
References (4)
To err is human: building a safer health system
(1999)Crossing the quality chasm: a new health system for the 21st century
(2001)
Cited by (7)
Development of an instrument to measure seniors' patient safety health beliefs: The Seniors Empowerment and Advocacy in Patient Safety (SEAPS) survey
2007, Patient Education and CounselingA 5-facet framework to describe patient engagement in patient safety
2018, Health ExpectationsScoping review and approach to appraisal of interventions intended to involve patients in patient safety
2010, Journal of Health Services Research and PolicyEducating seniors to be patient safety self-Advocates in primary care
2008, Journal of Patient SafetyHow experiencing preventable medical problems changed patients' interactions with primary health care
2005, Annals of Family Medicine