OBJECTIVE: To describe family perceptions of care at the end of life. METHODS: In a
representative sample of older people who died from chronic diseases, family members were …

Context Despite increasing interest in advance care planning (ACP) and previous ACP
descriptions, a consensus definition does not yet exist to guide clinical, research, and policy …

Importance Serious illness impairs function and threatens survival. Patients facing serious
illness value shared decision making, yet few decision aids address the needs of this …

Background Communication between families and providers in the ICU affects patient and
family outcomes and use of health-care resources. Recent research studies have tested …

Importance For patients with limited prognosis, some medication risks may outweigh the
benefits, particularly when benefits take years to accrue; statins are one example. Data are …

Feeding and eating difficulties leading to weight loss are common in the advanced stages of
dementia. When such problems arise, family members are often faced with making a …

Efforts to improve end‐of‐life decision‐making quality have emphasized the principle of
individual autonomy to better ensure that patients receive care consistent with their preferences. …

Context Standardized outcomes that define successful advance care planning (ACP) are
lacking. Objective The objective of this study was to create an Organizing Framework of ACP …

Importance Family caregivers of patients with chronic critical illness experience significant
psychological distress. Objective To determine whether family informational and emotional …

Importance In advanced dementia, goals of care decisions are challenging and medical care
is often more intensive than desired. Objective To test a goals of care (GOC) decision aid …