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Research ArticleOriginal Research

Primary Care Patients Hastening Death by Voluntarily Stopping Eating and Drinking

Eva E. Bolt, Martijn Hagens, Dick Willems and Bregje D. Onwuteaka-Philipsen
The Annals of Family Medicine September 2015, 13 (5) 421-428; DOI: https://doi.org/10.1370/afm.1814
Eva E. Bolt
1Department of Public and Occupational Health, EMGO Institute for Health and Care Research, VUmc Expertise Center for Palliative Care, VU University Medical Center, Amsterdam, The Netherlands
MD
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  • For correspondence: ee.bolt@vumc.nl
Martijn Hagens
1Department of Public and Occupational Health, EMGO Institute for Health and Care Research, VUmc Expertise Center for Palliative Care, VU University Medical Center, Amsterdam, The Netherlands
MSc
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Dick Willems
2Department of General Practice, Section of Medical Ethics, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands
MD, PhD
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Bregje D. Onwuteaka-Philipsen
1Department of Public and Occupational Health, EMGO Institute for Health and Care Research, VUmc Expertise Center for Palliative Care, VU University Medical Center, Amsterdam, The Netherlands
PhD
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Abstract

PURPOSE Little is known about the role family physicians play when a patient deliberately hastens death by voluntarily stopping eating and drinking (VSED). The purpose of this study was to gain more insight for family physicians when confronted with patients who wish to hasten death by VSED. We aimed to describe physicians’ involvement in VSED, to describe characteristics and motives of their patients, and to describe the process of VSED in terms of duration, as well as common symptoms in the last 3 days of life.

METHODS We undertook a survey of a random national sample of 1,100 family physicians (response rate 72%), and 500 of these physicians received questions about their last patient who hastened death by VSED.

RESULTS Of the 978 eligible physicians, 708 responded (72.4%); 46% had cared for a patient who hastened death by VSED. Of the 500 physicians who received the additional questions, 440 were eligible and 285 (64.8%) responded; they described 99 cases of VSED. Seventy percent of these patients were aged older than 80 years, 76% had severe disease (27% with cancer), and 77% were dependent on others for everyday care. Frequent reasons for the patients’ death wish were somatic (79%), existential (77%), and dependence (58%). Median time until death was 7 days, and the most common symptoms before death were pain, fatigue, impaired cognitive functioning, and thirst or dry throat. Family physicians were involved in 62% of cases.

CONCLUSIONS Patients who hasten death by VSED are mostly in poor health. It is not unlikely for family physicians to be confronted with VSED. They can play an important role in caring for these patients and their proxies by informing them of VSED and by providing support and symptom management during VSED.

  • terminal care
  • palliative care
  • hospice care
  • withholding treatment
  • allowing to die
  • voluntary stopping of eating and drinking
  • death wish
  • hastening death
  • Received for publication February 9, 2015.
  • Revision received May 14, 2015.
  • Accepted for publication May 26, 2015.
  • © 2015 Annals of Family Medicine, Inc.
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The Annals of Family Medicine: 13 (5)
The Annals of Family Medicine: 13 (5)
Vol. 13, Issue 5
September/October 2015
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Primary Care Patients Hastening Death by Voluntarily Stopping Eating and Drinking
Eva E. Bolt, Martijn Hagens, Dick Willems, Bregje D. Onwuteaka-Philipsen
The Annals of Family Medicine Sep 2015, 13 (5) 421-428; DOI: 10.1370/afm.1814

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Primary Care Patients Hastening Death by Voluntarily Stopping Eating and Drinking
Eva E. Bolt, Martijn Hagens, Dick Willems, Bregje D. Onwuteaka-Philipsen
The Annals of Family Medicine Sep 2015, 13 (5) 421-428; DOI: 10.1370/afm.1814
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Subjects

  • Domains of illness & health:
    • Chronic illness
  • Person groups:
    • Older adults
    • Vulnerable populations
  • Methods:
    • Qualitative methods
  • Other research types:
    • Health policy
    • Health services
    • Professional practice
  • Core values of primary care:
    • Personalized care
    • Relationship
  • Other topics:
    • Ethics

Keywords

  • terminal care
  • palliative care
  • hospice care
  • withholding treatment
  • allowing to die
  • voluntary stopping of eating and drinking
  • death wish
  • hastening death

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