Article Figures & Data
Figures
- Figure 1
PCORI guidance for patient-centeredness and engagement in research.
Note: The criteria have been refined over time. This figure reflects the PCORI criteria as of publication of this manuscript.
- Figure 2
PCOR engagement principles.
- Figure 3
PCORI Engagement Rubric.
Additional Files
The Article in Brief
The PCORI Engagement Rubric: Promising Practices for Partnering in Research
Laura Forsythe , and colleagues
Background Engaging patients, caregivers, and other health care stakeholders as partners in planning, conducting, and disseminating research is a promising way to improve clinical decision making and outcomes. However, many involved in research lack clarity about when and how to engage as partners in the clinical research process. The PCORI Engagement Rubric, developed by the Patient-Centered Outcomes Research Institute (PCORI), offers a framework for operationalizing stakeholder engagement in research.
What This Study Found The PCORI Engagement Rubric includes: principles of engagement; definitions of stakeholder types; key considerations for planning, conducting and disseminating engaged research; potential engagement activities; and examples of promising practices from PCORI-funded projects.
Implications
- This rubric is intended to help shift the research paradigm from one of conducting research on patients as subjects to a pursuit carried out in collaboration with patients and other stakeholders to better reflect the values, preferences, and outcomes that matter to the patient community.
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