Article Figures & Data
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Characteristics QResearch RCGP Research & Surveillance Network Center Clinical Practice Research Datalink UK Biobank Established, y 2003 1957 1989 2006 GP practices, No. 1,500 (increasing to 2,519 from Sept 2020) 700 1,841 Partial cohort coverage Current patient records as of Jan 1, 2020, No. 10.6 million (21 million from Sept 2020) 5 million 14 million 0.5 million Coverage, countries England, Scotland England All of UK England, Scotland, Wales Age groups All All All 40-69 years at recruitment Clinical system EMIS Web EMIS Web, INPS Vision, TPP System One EMIS Web, INPS Vision Bespoke system Birth registration Yes Yes Yes No Death registration Yes Yes Yes Yes Sociodemographic data Yes Yes Yes Yes Ethnicity Yes Yes Yes Yes Genome-wide genotyping data No No No Yes Geographical location Yes Yes Yes Yes Lab tests incl COVID-19 results Yes Yes Yes Yes Anthropometric data Yes Yes Yes Yes Clinical signs and symptoms Yes Yes Yes Yes Drugs prescribed Yes Yes Yes Yes Radiology reports Yes Yes Yes No Hospital referral Yes Yes Yes Yes Hospital diagnosis Yes Yes Yes Yes GP attendances Yes Yes Yes Partial Hospital attendance Yes Yes Yes Yes Additional key linkages to other data setsa Hospital episode statistics Yes Yes Yes No HES outpatient data Yes Yes Yes No HES accident and emergency data Yes Yes Yes No HES diagnostic imaging data set Yes Yes Yes No Death registration data from the Office for National Statistics Yes Yes Yes Yes Intensive care data set: ICNARC Case Mix Program Yes No Pending No URL for data access https://www.qresearch.org https://www.qresearch.org https://www.cprd.com https://www.ukbiobank.ac.uk/aboutbiobank-uk COVID-19 = coronavirus disease 2019; GP = general practitioner; HES = hospital episode statistics; ICNARC = Intensive Care National Audit and Research Centre; INPS = In Practice Systems Limited; RCGP = Royal College of General Practitioners; TPP = The Phoenix Partnership.
Note: For more information see relevant websites. The data in these databases are likely to overlap (about 20% of patients will fall into at least 2 of the data sets). Additional governance and approvals will be needed to remove duplicate entries so that a single patient record and characteristics are included.
↵aFull lists available from each database on request.
Treatment Setting Time Period Type of Outcomes to Report Primary care outcomes Short-term Lower respiratory tract infection (pneumonia) Emergency admission
ICU admissionLong-term All-cause mortality and cause-specific mortality including COVID-19 specific mortality ICU outcomes Short-term Vital status at ICU discharge (alive/dead)
Vital status at acute hospital discharge (alive/dead)
Days of advanced respiratory support (artificial ventilation)
Days of advanced cardiovascular support (inotropes, pressors or mechanical cardiovascular support)
Days of renal support (use of renal replacement therapy)
Days of ICU care (reported from ICU admission to discharge)
Days of acute hospital care after ICU discharge (for repeat ICU admissions in the same acute hospital admission the total days not on ICU should be used)Long-term Vital status (alive/dead) at 30 and 90 days after ICU admission
All-cause and COVID-19 specific mortality at 6 and 12 months after ICU admissionCOVID-19 = coronavirus disease 2019; ICU = intensive care unit.
Additional Files
Supplemental Appendixes
Supplemental Appendixes
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