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OtherReflections

System-Based Participatory Research in Health Care: An Approach for Sustainable Translational Research and Quality Improvement

Julie A Schmittdiel, Kevin Grumbach and Joe V. Selby
The Annals of Family Medicine May 2010, 8 (3) 256-259; DOI: https://doi.org/10.1370/afm.1117
Julie A Schmittdiel
PhD
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Kevin Grumbach
MD
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Joe V. Selby
MD, MPH
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  • Health system and community benefit by linking with PBRNs
    Lyle J (LJ) Fagnan
    Published on: 02 June 2010
  • System-Based Participatory Research and Health Care Reform
    J Lloyd Michener
    Published on: 18 May 2010
  • Using participatory research to promote translational science
    Ann C. Macaulay
    Published on: 18 May 2010
  • Published on: (2 June 2010)
    Page navigation anchor for Health system and community benefit by linking with PBRNs
    Health system and community benefit by linking with PBRNs
    • Lyle J (LJ) Fagnan, Portland, OR

    Schmittdiel, Grumbach, and Selby describe the importance of health systems engaging in collaborative partnerships and building on existing community strengths and investing in long-term relationships to promote translational research.[1] Health systems understand population-based health approaches to improving community health. Health systems will benefit from building on the long-term relationships that practice-based...

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    Schmittdiel, Grumbach, and Selby describe the importance of health systems engaging in collaborative partnerships and building on existing community strengths and investing in long-term relationships to promote translational research.[1] Health systems understand population-based health approaches to improving community health. Health systems will benefit from building on the long-term relationships that practice-based research networks (PBRNs) have with their member clinicians, and communities. PBRNs have built their organizations on recruitment, engagement and retention of their members. This is a long-term process that involves trust and a focus on mutual benefit. Improving community health often involves interventions to implement new models to deliver preventive health and chronic illness care. PBRNs have recognized the importance of linking with community and promote research as a community asset.[2] Blending community health development with community-based participatory research is a model promoted by several PBRNs including the Oregon Rural Practice-based Research Network (ORPRN).[3] PBRNs have an increasingly strong relationship with the T2 research community. PBRNs are a key component of the Clinical Translational Science Awards funded by the National Institutes of Health and this linkage is important to both the PBRN and the affiliated academic health center.[4] Schmittdiel and colleagues appropriately highlight the need for rapid quality improvement and translational research.[1] Communities are action oriented and do not tolerate the long process of traditional research. This is where PBRNs with an emphasis on being nimble with rapid project turnaround are effective in contrast to health systems and academic organizations.

    It is important that health systems and PBRNs look for synergy in translational research and quality improvement efforts as resources are limited. These resources include funding and research capacity. The basic infrastructure for PBRNs has been described; yet, support for the basic infrastructure to support PBRNs is limited.[5] An effort to avoid duplicating the infrastructure required to perform CBPR in communities is desirable. Health systems will be more likely to succeed in promoting community health by providing financial and technical support to existing PBRNs and their practices. The “band-width” of practices to participate in community-based research is limited and PBRNs and health systems should work together to identify research that can be translated into community benefit.

    1. Schmittdiel JA, Grumbach K, Selby JV. System-based participatory research in health care: an approach for sustainable translational research and quality improvement. Ann Fam Med. May-Jun 2010;8(3):256-259.
    2. Westfall JM, Fagnan LJ, Handley M, et al. Practice-based research is community engagement. J Am Board Fam Med. Jul-Aug 2009;22(4):423-427.
    3. McGinnis P HM, Davis M, Smith J, Beamer B, Hastings D. Transitioning from CHIP to CHIRP, Blending Community Health Development with Community-Based Participatory Research. Family & Community Health. 2010;33(3):228-237.
    4. Fagnan LJ, Davis M, Deyo RA, Werner JJ, Stange KC. Linking practice-based research networks and Clinical and Translational Science Awards: new opportunities for community engagement by academic health centers. Acad Med. Mar 2010;85(3):476-483.
    5. Green LA, White LL, Barry HC, Nease DE, Jr., Hudson BL. Infrastructure requirements for practice-based research networks. Ann Fam Med. May-Jun 2005;3 Suppl 1:S5-11.

    Competing interests:   None declared

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    Competing Interests: None declared.
  • Published on: (18 May 2010)
    Page navigation anchor for System-Based Participatory Research and Health Care Reform
    System-Based Participatory Research and Health Care Reform
    • J Lloyd Michener, Durham, NC

    Julie Schmittdiel's article on Participatory Research in Health Care is an excellent summary of how the health care delivery system can be a subject of research, and how the principles of community engagement can guide such studies. This approach underlies current discussions about making the delivery system the subject of comparative effectiveness studies, potentially using the CTSAs as 'hubs' for such assessments, and...

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    Julie Schmittdiel's article on Participatory Research in Health Care is an excellent summary of how the health care delivery system can be a subject of research, and how the principles of community engagement can guide such studies. This approach underlies current discussions about making the delivery system the subject of comparative effectiveness studies, potentially using the CTSAs as 'hubs' for such assessments, and permitting the sort of rapid cycle system redesign that the authors describe. Given the great geographic variation in disease burden and outcomes, multiple local projects will be needed, so we can assess what delivery models are effective for whom, when.

    For Family Medicine, this is a great opportunity to provide insights and leadership, and to ensure, as the authors conclude, that "research questions will be relevant, interventions sustainable, and research findings translated into systematic action."

    Competing interests:   None declared

    Show Less
    Competing Interests: None declared.
  • Published on: (18 May 2010)
    Page navigation anchor for Using participatory research to promote translational science
    Using participatory research to promote translational science
    • Ann C. Macaulay, Montreal, Canada

    This is a key time to develop the skills necessary for successful translational science activities to promote improved health and reduce disparities. Congratulations to Drs Schmittdiel, Grumbach and Selby for their very thoughtful essay that outlines key points in applying the principles of participatory research in order to improve translational science. This essay clearly outlines how leaders from health delivery syst...

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    This is a key time to develop the skills necessary for successful translational science activities to promote improved health and reduce disparities. Congratulations to Drs Schmittdiel, Grumbach and Selby for their very thoughtful essay that outlines key points in applying the principles of participatory research in order to improve translational science. This essay clearly outlines how leaders from health delivery systems should be incorporated into the research team throughout the process from finalising the research question(s) to interpretation, dissemination and application of the results. It also clearly argues that health delivery leaders should be considered a community; underlines the key participatory research principles of building on strengths etc and offers excellent examples from their own work. In addition I strongly recommend that research teams further expand to include patients and patient organizations, as they will bring an added benefit to both the research and translational science (1).

    1. Macaulay AC, Nutting PA. Moving the Frontiers Forward: Incorporating Community-Based Participatory Research Into Practice-Based Research Networks Ann Fam Med 2006;4:4-7

    Competing interests:   None declared

    Show Less
    Competing Interests: None declared.
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The Annals of Family Medicine: 8 (3)
The Annals of Family Medicine: 8 (3)
Vol. 8, Issue 3
1 May 2010
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System-Based Participatory Research in Health Care: An Approach for Sustainable Translational Research and Quality Improvement
Julie A Schmittdiel, Kevin Grumbach, Joe V. Selby
The Annals of Family Medicine May 2010, 8 (3) 256-259; DOI: 10.1370/afm.1117

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System-Based Participatory Research in Health Care: An Approach for Sustainable Translational Research and Quality Improvement
Julie A Schmittdiel, Kevin Grumbach, Joe V. Selby
The Annals of Family Medicine May 2010, 8 (3) 256-259; DOI: 10.1370/afm.1117
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