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Encouraging Patient-Centered Care by Including Quality-of-Life Questions on Pre-Encounter Forms
Becky A. Purkaple , and colleagues
Background Patient participation in clinical decision-making improves outcomes including quality of life (QOL). Yet physicians tend to focus on diseases and symptoms rather than patient-oriented outcomes, such as the ability to participate in meaningful life activities. This study explores whether patients can encourage primary care physicians to pay attention to their QOL goals by writing them on pre-encounter forms. Studying whether patients could encourage their primary care physicians to be more patient-centered by using pre-encounter forms to alert their physicians to quality of life goals and concerns
What This Study Found The intervention questionnaire led to little focus on quality of life during physician visits, when compared to a questionnaire that simply asked about symptoms. Although patients effectively articulated their quality of life goals on paper, quality of life was mentioned in only two of 64 encounters, once by a patient and once by a physician. In neither case was the QOL information used in decision making. Furthermore, directly observed empathy was greater in encounters in the control group, compared to the intervention group.
Implications
- Recording QOL goals on paper does not prime patients or physicians to alter the process or content of clinical encounters and suggests that QOL information is hard to incorporate into the patient encounter.
- With previous research showing that patient participation in clinical decision making improves outcomes, including quality of life, the authors call for training and pre-visit coaching for both patients and physicians to adopt this new behavior.