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Research ArticleResearch Brief

Health Care Disparities of Ohioans With Developmental Disabilities Across the Lifespan

Jessica A. Prokup, Rebecca Andridge, Susan M. Havercamp and Emily A. Yang
The Annals of Family Medicine September 2017, 15 (5) 471-474; DOI: https://doi.org/10.1370/afm.2108
Jessica A. Prokup
1Medical Student Research Program, The Ohio State University College of Medicine, Columbus, Ohio
2The Ohio State University, Nisonger Center, Leadership Education in Neuro-developmental Disabilities (LEND), Columbus, Ohio
RN, BSN
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Rebecca Andridge
3Division of Biostatistics, The Ohio State University College of Public Health, Columbus, Ohio
PhD
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Susan M. Havercamp
4The Ohio State University, Nisonger Center, Ohio Disability & Health Program, Columbus, Ohio
PhD
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  • For correspondence: susan.havercamp@osumc.edu
Emily A. Yang
4The Ohio State University, Nisonger Center, Ohio Disability & Health Program, Columbus, Ohio
MPH
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    Table 1

    Health Indicators of Respondents

    IndicatorDevelopmental Disability % (95% CI)No Developmental Disability % (95% CI)Prevalence Ratio % (95% CI)a
    Health status: fair or poor
    0–18 yb27.7 (22.7–32.6)1.1 (0.8–1.4)25.3 (18.5–34.6)c
    19–30 yd42.8 (33.0–52.6)6.7 (5.9–7.6)6.3 (4.9–8.2)c
    31–64 ye71.0 (66.6–75.3)11.3 (10.7–11.8)6.3 (5.8–6.8)c
    ≥65 yf76.0 (67.4–84.6)4.3 (3.8–4.9)4.3 (3.8–4.9)c
    Utilizationg
    ≥2 Overnight hospitalizations
     0–18 y8.5 (5.5–11.4)0.7 (0.5–.0.9)12.3 (7.7–19.6)c
     19–30 y14.2 (7.0–21.5)2.3 (1.8–2.8)6.1 (3.5–10.7)c
     31–64 y13.8 (10.8–16.8)2.2 (2.0–2.5)6.2 (4.8–7.9)c
     ≥65 y17.5 (10.2–24.8)4.6 (4.0–5.1)3.8 (2.5–5.9)c
    ≥2 Emergency department visits
     0–18 y23.8 (19.1–28.6)7.0 (6.3–7.7)3.4 (2.7–4.3)c
     19–30 y37.0 (27.4–46.6)11.6 (10.5–12.7)3.2 (2.4–4.2)c
     31–64 y36.8 (32.2–41.4)6.3 (5.9–6.8)5.8 (5.0–6.7)c
     ≥65 y34.5 (24.1–44.9)5.7 (5.0–6.3)6.1 (4.4–8.4)c
    Qualityg
    Primary care physician usually or always spends enough time with patient
     0–18 y91.6 (88.0–95.1)90.8 (89.9–91.8)1.01 (0.97–1.05)
     19–30 y70.0 (54.5–85.5)82.6 (80.5–84.7)0.85 (0.68–1.06)
     31–64 y83.2 (78.9–87.5)90.8 (90.2–91.5)0.92 (0.87–0.96)
     ≥65 y75.5 (63.9–87.0)92.7 (91.9–93.5)0.81 (0.70–0.95)c
    Primary care physician usually or always explains things well
     0–18 y94.7 (91.4–98.0)96.4 (95.8–96.9)0.98 (0.95–1.02)
     19–30 y89.7 (80.7–98.6)94.5 (93.2–95.7)0.95 (0.86–1.05)
     31–64 y84.5 (80.0–89.0)96.0 (95.5–96.4)0.88 (0.84–0.93)c
     ≥65 y83.0 (73.2–92.9)95.0 (94.4–95.7)0.87 (0.78–0.98)c
    Accessg
    Usual source of care
     0–18 y98.8 (97.5–100.0)95.5 (95.0–96.0)1.03 (1.02–1.05)h
     19–30 y88.5 (83.0–93.9)83.2 (82.0–84.4)1.06 (1.00–1.13)
     31–64 y93.0 (90.2–95.9)91.4 (90.9–91.9)1.02 (0.99–1.05)
     ≥65 y96.7 (93.2–100.0)96.1 (95.6–96.6)1.01 (0.97–1.04)
    Delayed treatment
     0–18 y10.1 (6.8–13.4)2.4 (2.0–2.8)4.2 (2.9–6.0)c
     19–30 y23.2 (15.1–31.3)14.3 (13.1–15.5)1.6 (1.1–2.3)h
     31–64 y32.5 (27.9–37.1)15.6 (15.0–16.3)2.1 (1.8–2.4)c
     ≥65 y14.9 (7.6–22.2)6.9 (6.2–7.6)2.2 (1.3–3.6)h
    Problem getting needed care
     0–18 y13.7 (10.1–17.4)2.1 (1.7–2.5)6.4 (4.7–8.9)c
     19–30 y16.2 (9.0–23.4)5.4 (4.6–6.2)3.0 (1.9–4.8)c
     31–64 y23.1 (19.1–27.1)4.9 (4.5–5.3)4.7 (3.9–5.8)c
     ≥65 y17.5 (8.5–26.5)2.4 (2.0–2.8)7.3 (4.2–12.6)c
    Received same-day care urgent needs
     0–18 y47.5 (41.3–53.7)61.1 (59.6–62.7)0.78 (0.68–0.89)c
     19–30 y34.7 (14.5–55.0)38.6 (34.2–43.0)0.90 (0.50–1.63)
     31–64 y28.9 (22.3–35.4)42.8 (40.9–44.6)0.68 (0.54–0.85)h
     ≥65 y12.5 (1.1–24.0)42.2 (39.5–44.9)0.30 (0.12–0.74)h
    Waited 2 or more days for urgent needs
     0–18 y29.9 (24.3–35.5)16.1 (14.9–17.3)1.9 (1.5–2.3)c
     19–30 y38.2 (17.7–58.6)34.3 (30.0–38.6)1.1 (0.64–1.9)
     31–64 y48.0 (40.8–55.3)30.2 (28.5–31.9)1.6 (1.4–1.9)c
     ≥65 y44.0 (24.6–63.4)29.0 (26.4–31.5)1.5 (0.97–2.4)
    Usually or always received needed after-hours care from primary care physician
     0–18 y59.4 (53.0–65.7)61.6 (60.0–63.2)0.96 (0.86–1.08)
     19–30 y53.8 (24.0–83.6)59.6 (53.7–65.5)0.90 (0.51–1.59)
     31–64 y44.9 (35.6–54.2)48.5 (45.6–51.4)0.92 (0.75–1.15)
     ≥65 y46.8 (23.9–69.8)56.5 (51.8–61.2)0.83 (0.50–1.36)
    Problem seeing a specialisti
     0–18 y24.6 (19.2–30.0)19.3 (17.0–21.6)1.3 (0.99–1.6)
     19–30 y52.3 (38.6–66.1)26.8 (23.7–30.0)2.0 (1.5–2.6)c
     31–64 y47.6 (41.8–53.4)19.7 (18.4–21.0)2.4 (2.1–2.8)c
     ≥65 y45.8 (32.5–59.1)12.9 (11.5–14.2)3.6 (2.6–4.9)c
    Unmet health care needg
    Dental
     0–18 y8.3 (5.1–11.4)3.3 (2.8–3.8)2.5 (1.7–3.8)c
     19–30 y34.2 (24.7–43.8)14.0 (12.8–15.2)2.4 (1.8–3.3)c
     31–64 y34.4 (29.9–38.9)10.0 (9.5–10.6)3.4 (3.0–3.9)c
     ≥65 y20.8 (12.2–29.3)5.0 (4.5–5.6)4.1 (2.7–6.3)c
    Vision
     0–18 y5.0 (2.6–7.3)1.8 (1.4–2.2)2.8 (1.7–4.6)c
     19–30 y28.7 (19.4–38.0)8.0 (7.0–8.9)3.6 (2.6–5.1)c
     31–64 y31.3 (26.9–35.7)9.5 (9.0–10.0)3.3 (2.8–3.8)c
     ≥65 y24.4 (14.9–34.0)5.5 (4.9–6.1)4.4 (2.9–6.6)c
    Prescription
     0–18 y9.7 (6.4–13.0)1.7 (1.4–2.0)5.7 (3.9–8.4)c
     19–30 y24.8 (16.2–33.4)12.4 (11.2–13.5)2.0 (1.4–2.9)h
     31–64 y28.3 (24.1–32.5)14.2 (13.5–14.8)2.0 (1.7–2.3)c
     ≥65 y24.6 (15.1–34.0)9.3 (8.5–10.1)2.6 (1.8–3.9)c
    Other (eg, medical examination, medical supply)
     0–18 y10.6 (7.3–13.9)1.7 (1.4–2.0)6.3 (4.4–9.1)c
     19–30 y27.5 (18.6–36.3)6.3 (5.5–7.2)4.3 (3.1–6.2)c
     31–64 y26.2 (22.0–30.5)6.1 (5.6–6.5)4.3 (3.6–5.2)c
     ≥65 y10.5 (5.2–15.7)2.3 (1.8–2.7)4.6 (2.7–7.9)c
    ≥1 Unmet need
     0–18 y19.6 (15.2–24.0)5.7 (5.0–6.3)3.5 (2.7–4.4)c
     19–30 y55.9 (46.1–65.8)25.6 (24.1–27.1)2.2 (1.8–2.6)c
     31–64 y61.2 (56.6–65.8)25.4 (24.6–26.1)2.4 (2.2–2.6)c
     ≥65 y50.1 (39.7–60.3)16.8 (15.8–17.8)3.0 (2.4–3.7)c
    • Note: Because individuals with developmental disabilities represent a small percentage of the population, some outcomes were endorsed by a small number of respondents.

    • ↵a Prevalence ratios and P values are for the difference in health indicators between people with and without developmental disabilities within each age-group.

    • ↵b Developmental disability, n = 419; no developmental disability, n = 7,701.

    • ↵c P <.001.

    • ↵d Developmental disability, n = 148; no developmental disablility, n = 5,225.

    • ↵e Developmental disability, n = 779; no developmental disability, n = 19,369.

    • ↵f Developmental disability, n = 178; no developmental disability, n = 10,044.

    • ↵g During the past 12 months.

    • ↵h P ≤.01.

    • ↵i Among respondents who needed specialist care (19.3% of children with a developmental disability and 78.4% of children with no developmental disability did not need specialist care; 34.7% of adults with a developmental disability aged 19 years and older and 67.1% of adults with no developmental disability aged 19 years and older did not need specialist care).

Additional Files

  • Tables
  • Supplemental Tables

    Supplemental Table

    Files in this Data Supplement:

    • Supplemental data: Table - PDF file
  • The Article in Brief

    Health Care Disparities of Ohioans With Developmental Disabilities Across the Lifespan

    Susan M. Havercamp , and colleagues

    Background Developmental disabilities are severe, chronic conditions that impair cognitive and/or physical functioning, resulting in significant functional limitations throughout the lifespan. This study explores differences in a range of health indicators between people with and without developmental disabilities.

    What This Study Found There are significant disparities between individuals with and without developmental disabilities in health status, health care quality, utilization, access to care, and unmet healthcare needs. A telephone survey found that children and older adults with developmental disabilities experienced the greatest disparities in unmet healthcare needs. Fourteen percent of children 0-18 years of age with developmental disabilities reported problems getting needed care, compared to 2 percent of children without developmental disabilities. Among adults age 65 and older, 50 percent of those with developmental disabilities reported one or more unmet health care needs, compared to 17 percent of those without such disabilities.

    Implications

    • The authors call for medical schools to incorporate training in developmental disabilities into their curricula to help reduce health care disparities.
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The Annals of Family Medicine: 15 (5)
The Annals of Family Medicine: 15 (5)
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Health Care Disparities of Ohioans With Developmental Disabilities Across the Lifespan
Jessica A. Prokup, Rebecca Andridge, Susan M. Havercamp, Emily A. Yang
The Annals of Family Medicine Sep 2017, 15 (5) 471-474; DOI: 10.1370/afm.2108

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Health Care Disparities of Ohioans With Developmental Disabilities Across the Lifespan
Jessica A. Prokup, Rebecca Andridge, Susan M. Havercamp, Emily A. Yang
The Annals of Family Medicine Sep 2017, 15 (5) 471-474; DOI: 10.1370/afm.2108
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