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Research ArticleOriginal ResearchA

“We Feel Alone and Not Listened To”: Parents’ Perspectives on Pediatric Serious Illness Care in Somali, Hmong, and Latin American Communities

Jennifer Needle, Sey Lee, Amran Ahmed, Rodolfo Batres, Jinhee Cha, Pilar de la Parra, Shannon Pergament and Kathleen A. Culhane-Pera
The Annals of Family Medicine May 2024, 22 (3) 215-222; DOI: https://doi.org/10.1370/afm.3106
Jennifer Needle
1University of Minnesota, Minneapolis, Minnesota
MD, MPH, HEC-C
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  • For correspondence: jneedle@umn.edu
Sey Lee
2SoLaHmo Partnership for Health and Wellness, St Paul, Minnesota
BS
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Amran Ahmed
2SoLaHmo Partnership for Health and Wellness, St Paul, Minnesota
MN
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Rodolfo Batres
2SoLaHmo Partnership for Health and Wellness, St Paul, Minnesota
MD
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Jinhee Cha
2SoLaHmo Partnership for Health and Wellness, St Paul, Minnesota
MPH
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Pilar de la Parra
2SoLaHmo Partnership for Health and Wellness, St Paul, Minnesota
RN
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Shannon Pergament
1University of Minnesota, Minneapolis, Minnesota
2SoLaHmo Partnership for Health and Wellness, St Paul, Minnesota
MPH, MSW
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Kathleen A. Culhane-Pera
1University of Minnesota, Minneapolis, Minnesota
2SoLaHmo Partnership for Health and Wellness, St Paul, Minnesota
MD, MA
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Article Information

vol. 22 no. 3 215-222
DOI 
https://doi.org/10.1370/afm.3106
PubMed 
38806270

Published By 
The Annals of Family Medicine
Print ISSN 
1544-1709
Online ISSN 
1544-1717
History 
  • Received for publication September 11, 2023
  • Revision received January 15, 2024
  • Accepted for publication January 24, 2024
  • Published online May 28, 2024.

Copyright & Usage 
© 2024 Annals of Family Medicine, Inc.

Author Information

  1. Jennifer Needle, MD, MPH, HEC-C1⇑,
  2. Sey Lee, BS2,
  3. Amran Ahmed, MN2,
  4. Rodolfo Batres, MD2,
  5. Jinhee Cha, MPH2,
  6. Pilar de la Parra, RN2,
  7. Shannon Pergament, MPH, MSW1,2 and
  8. Kathleen A. Culhane-Pera, MD, MA1,2
  1. 1University of Minnesota, Minneapolis, Minnesota
  2. 2SoLaHmo Partnership for Health and Wellness, St Paul, Minnesota
  1. CORRESPONDING AUTHOR Jennifer Needle, University of Minnesota Center for Bioethics, 623 Children’s Rehabilitation Center, 426 Church Street SE, Minneapolis, MN 55455-0436, jneedle{at}umn.edu

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The Annals of Family Medicine: 22 (3)
The Annals of Family Medicine: 22 (3)
Vol. 22, Issue 3
May/June 2024
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“We Feel Alone and Not Listened To”: Parents’ Perspectives on Pediatric Serious Illness Care in Somali, Hmong, and Latin American Communities
Jennifer Needle, Sey Lee, Amran Ahmed, Rodolfo Batres, Jinhee Cha, Pilar de la Parra, Shannon Pergament, Kathleen A. Culhane-Pera
The Annals of Family Medicine May 2024, 22 (3) 215-222; DOI: 10.1370/afm.3106

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“We Feel Alone and Not Listened To”: Parents’ Perspectives on Pediatric Serious Illness Care in Somali, Hmong, and Latin American Communities
Jennifer Needle, Sey Lee, Amran Ahmed, Rodolfo Batres, Jinhee Cha, Pilar de la Parra, Shannon Pergament, Kathleen A. Culhane-Pera
The Annals of Family Medicine May 2024, 22 (3) 215-222; DOI: 10.1370/afm.3106
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Subjects

  • Domains of illness & health:
    • Acute illness
    • Chronic illness
  • Person groups:
    • Children's health
  • Methods:
    • Qualitative methods
    • Participatory / action research
  • Other topics:
    • Communication / decision making
    • Disparities in health and health care
    • Social / cultural context

Keywords

  • pediatric health care
  • health disparities
  • qualitative research
  • community-based participatory research
  • communication

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