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Research ArticleOriginal Research

Electronic Data Collection Options for Practice-Based Research Networks

Wilson D. Pace and Elizabeth W. Staton
The Annals of Family Medicine May 2005, 3 (suppl 1) S21-S29; DOI: https://doi.org/10.1370/afm.270
Wilson D. Pace
MD
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Elizabeth W. Staton
MSTC
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Article Figures & Data

Tables

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    Table 1.

    Electronic Data Collection Tools and Terms

    Ease of ImplementationTechnologyDescription
    LAN = local area network; WAN = wide-area network; VPN = virtual private network; PDA = personal digital assistant.
    Easier to implementNotebook computerA portable computer that is operated by using a keyboard. Traditional notebook computers now over- lap with tablet PCs (described below). A tablet PC can be operated as a notebook. Most notebook computers do not support touch screens and cannot be configured so that the screen is accessible when flat against the body of the computer
    Thick clientA system that operates with part of the software loaded on the workstation and that is continuously in contact with the data repository
    Internet-based systemA system run over the open Internet (also referred to as the Web or World Wide Web) as opposed to over a dedicated LAN or WAN. Security measures can be applied to the data transferred between 2 points in the system (such as with encryption or by creating a VPN) to markedly improve the safety of data passed across these systems
    Browser-based systemA system wherein the screens are loaded into the workstation’s Internet browser as needed from a central server. Information is returned to the server at a later time (seconds, minutes, or days later, depending on how the system is used). The workstation and the server only communicate with each other through “requests” from the workstation (ie, clicking the Submit button). These systems are considered “stateless” in that they only intermittently connect the server and the workstation
    PDAA small handheld computer that can be easily carried, that typically has an instant-on feature, and that provides rapid access to data, software, and data input systems. These computers typically operate independent of a network or the Internet, although wireless connectivity is becoming more common. The most common operating systems within the United States are Palm OS (PalmSource, Sunnyvale, Calif) and Pocket PC (Microsoft Corp, Redmond, Wash)
    More difficult to implementTablet PCA computer that, like a PDA, is operated by using a touch screen but that has a larger screen and often greater computer power. Currently, tablet PCs—with or without built-in keyboards—operate on a full version of Microsoft’s Windows XP and may contain relatively large hard drives. These computers are often operated over a wireless network, but may operate independently. Tablet PCs are configured so that the screen may be used and viewed while flat against the body of the computer, much like a tablet of paper
    • View popup
    Table 2.

    Technologic Strengths and Limitations

    Issue
    TechnologyNetwork Distribution Capability*Connectivity Across Multiple SystemsContinuity or Longitudinal DataEase of Development
    Symbols indicate if, for addressing a given issue, the technology is strongly recommended (++), is recommended (+), is neutral/carries no recommendation (+/−), may work (−), or is not recommended (− −).
    PDA = personal digital assistant.
    * Based on mining data from more than 1 system. Data mining might be more feasible is only a single system is used.
    Mining existing data sources+/−− −++− − *
    Tablet PCs+/−++/−++
    Thick client− −− −++/−
    Browser-based system+++++++
    Internet-based system+++++++
    PDA+++−+/−
    Notebook computer−− −−++
    • View popup
    Table 3.

    Selected Technical Issues to Consider When Developing an Electronic Data Collection System

    IssueTechnology
    PDA = personal digital assistant; SSL = Secure Sockets Layer; VPN = virtual private network; ASP = Active Server pages; PBRN = practice-based research network; LAN = local area network; WAN = wide-area network.
    What hardware will you be using?Workstation or desktop computer in office
    PDA supplied by the network
    PDA supplied by the clinician
    Pen-tablet computer
        Slate
        Convertible
    Web server for hosting data forms
        Does it have a security certificate to run SSL?
    Web server for synchronization (does not have to be a separate server)
        Does it have a security certificate to run SSL?
    Database server
        Application server (could be the database server or the Web server in a minimal configuration)
    What software will you be using?Operating system for the Web server(s)
        Windows
        Linux
        Unix
    Web services software (IIS, Apache, others)
    Security
        SSL with certificates
        VPN
    Development software
        ASP
        .NET
        Visual Basic/C++
        Power Builder
        ColdFusion and others
        One of many PDA development systems
        One of many Web survey tools
        Third-party controls for specific activities
        One of several database systems
    Network and workstation issuesWho has administrative rights to office workstations?
    Who administers the fire wall for the PBRN and/or its service provider?
    Who administers the fire wall for each practice in the network?
    What types of networks and connectivity are in each practice?
        Broadband
        Dial-up modem
        Wireless within office
        LAN
        WAN
    Personnel issuesWho will develop the data collection forms?
    Who will manage the database, including security and fail-safe mechanisms?
    Who will train practice staff and clinicians to use the system?
    What level of support for the system is required?
        24 hours per day, 7 days per week
        8:00 am-5:00 pm Monday through Friday
        Less-intense support
    Replacement issuesWho will pay to replace equipment as it ages?
        Central hardware and software
        Practice-level hardware
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The Annals of Family Medicine: 3 (suppl 1)
The Annals of Family Medicine: 3 (suppl 1)
Vol. 3, Issue suppl 1
1 May 2005
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Electronic Data Collection Options for Practice-Based Research Networks
Wilson D. Pace, Elizabeth W. Staton
The Annals of Family Medicine May 2005, 3 (suppl 1) S21-S29; DOI: 10.1370/afm.270

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Electronic Data Collection Options for Practice-Based Research Networks
Wilson D. Pace, Elizabeth W. Staton
The Annals of Family Medicine May 2005, 3 (suppl 1) S21-S29; DOI: 10.1370/afm.270
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  • Article
    • Abstract
    • INTRODUCTION
    • WHY COLLECT DATA ELECTRONICALLY?
    • ELECTRONIC DATA COLLECTION OPTIONS
    • PBRN EXPERIENCE WITH ELECTRONIC DATA COLLECTION: SOME EXAMPLES
    • SHOULD A PBRN PURSUE ELECTRONIC DATA COLLECTION?
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