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Research ArticleOriginal Research

Using Multiple Sources of Knowledge to Reach Clinical Understanding of Chronic Fatigue Syndrome

Carolyn A. Chew-Graham, Greg Cahill, Christopher Dowrick, Alison Wearden and Sarah Peters
The Annals of Family Medicine July 2008, 6 (4) 340-348; DOI: https://doi.org/10.1370/afm.867
Carolyn A. Chew-Graham
MD, FRCGP
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Greg Cahill
MSc
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Christopher Dowrick
MD, FRCGP
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Alison Wearden
PhD
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Sarah Peters
PhD
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    Table 1.

    Demographic Details of Participating Patients

    IdentificationSexAge, YearsMarital StatusDeprivation IndexaMonths Since CFS/ME Diagnosis
    CFS/ME = Chronic fatigue syndrome/myalgic encephalitis. FINE = Fatigue Intervention by Nurses.
    Note: All patients referred to the FINE Trial and recruited to this qualitative study were white British.
    a Townsend P, Philmore P, Beattie A. Health Deprivation: Inequality and the North. London: Croom Helm; 1988.
    P1Female25Single1312
    P2Female32Single71
    P3Male43Married−539
    P4Female55Cohabiting3226
    P5Male55Single5140
    P6Female52Married736
    P7Female35Married−41
    P8Female51Married−425
    P9Male41Single718
    P10Male37Married133
    P11Male39Married−457
    P12Male63Married010
    P13Male44Separated−5151
    P14Female54Divorced−442
    P15Male42Married−357
    P16Female38Single−24
    P17Female56Married−3168
    P18Female42Married159
    P19Female59Single6180
    P20Male61Married−3144
    P21Male37Married41
    P22Female78Married−3240
    P23Female60Widowed227
    P24Male56Married−4120
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    Table 2.

    Demographic Details of Participating Family Physicians

    IdentificationSexAge, YearsEthnicityPractice List SizeNo. of Patients Referred to the FINE Triala
    FINE = Fatigue Intervention by Nurses; FP = family physician.
    a At time of interview.
    FP0Male53White2,3000
    FP1Male45Black4,0000
    FP2Male61Black2,2000
    FP3Male30White6,0002
    FP4Male63Asian6,0000
    FP5Female36White6,5002
    FP6Female56White5,0005
    FP7Male58Asian4,0000
    FP8Female54White2,3001
    FP9Female38White7,0001
    FP10Female26White7,0000
    FP11Female36White5,5002
    FP12Female59White7,3003
    FP13Male57Asian2,9503

Additional Files

  • Tables
  • In Brief

    Using Multiple Sources of Knowledge to Reach Clinical Understanding of Chronic Fatigue Syndrome

    Carolyn A. Chew-Graham , and colleagues

    Background Chronic fatigue syndrome (CFS) is a condition that is not well understood. In addition to other symptoms, people with CFS feel too tired to do all of their normal, daily activities. This study explores how patients with CFS, as well as family physicians, view and understand the condition, and how their understanding might affect the primary care visit.

    What This Study Found Interviews with 24 patients and 14 family physicians in the United Kingdom find that family physicians feel unprepared by their medical training and education to diagnose and manage CFS. As a result, they seek information through other sources, such as the media, observations of patients outside the office, and personal experience. Patients are aware of doctors' limited understanding of CFS and sometimes feel their concerns are dismissed.

    Implications

    • Family physicians need evidence-based knowledge about CFS.
    • Training and continuing medical education for CFS could make use of the rich base of knowledge that patients with CFS possess.
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The Annals of Family Medicine: 6 (4)
The Annals of Family Medicine: 6 (4)
Vol. 6, Issue 4
1 Jul 2008
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Using Multiple Sources of Knowledge to Reach Clinical Understanding of Chronic Fatigue Syndrome
Carolyn A. Chew-Graham, Greg Cahill, Christopher Dowrick, Alison Wearden, Sarah Peters
The Annals of Family Medicine Jul 2008, 6 (4) 340-348; DOI: 10.1370/afm.867

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Using Multiple Sources of Knowledge to Reach Clinical Understanding of Chronic Fatigue Syndrome
Carolyn A. Chew-Graham, Greg Cahill, Christopher Dowrick, Alison Wearden, Sarah Peters
The Annals of Family Medicine Jul 2008, 6 (4) 340-348; DOI: 10.1370/afm.867
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