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Research ArticleOriginal Research

Trajectories of Psychological Distress After Stroke

Jennifer H. White, Parker Magin, John Attia, Jonathan Sturm, Gregory Carter and Michael Pollack
The Annals of Family Medicine September 2012, 10 (5) 435-442; DOI: https://doi.org/10.1370/afm.1374
Jennifer H. White
1Hunter Stroke Service, Hunter New England Area Health Service, Australia
MMS
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  • For correspondence: Jennifer.white@hnehealth.nsw.gov.au
Parker Magin
2Primary Health Care Research and Evaluation Development Program, Discipline of General Practice, University of Newcastle, New South Wales, Australia
PhD, FRACGP
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John Attia
3Centre for Clinical Epidemiology and Biostatistics, University of Newcastle, New South Wales, Australia
MD, PhD
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Jonathan Sturm
4Gosford Hospital, Northern Sydney Central Coast Area Health Service, Sydney, Australia
5Department of Medicine, University of Newcastle, New South Wales, Australia
PhD
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Gregory Carter
6Centre for Brain and Mental Health Research (CBMHR), University of Newcastle, New South Wales, Australia
MB, BS, FRAN-ZCP, Cert Child Psych, PhD
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Michael Pollack
1Hunter Stroke Service, Hunter New England Area Health Service, Australia
MMSc
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    Table 1

    Example of Topic Guide

    QuestionsPrompts
    Main question
    Can you remember how you felt when you were admitted to hospital with stroke?Fear?
    What did you think was going on?
    Did you consider you were having a stroke?
    What is a “having a turn?” to you?
    How did it impact on you seeking medical help?
    Did you think it was serious?
    What was your biggest hope at that time?
    Relationship changes
    Have you experienced any changes in your relationships with:Did you still want the same things from people? Did you want more?
     FamilyHave you maintained the same friends?
     FriendsWhat was your experience with regards to resuming any sexual relationships?
     Strangers
    Adjustment
    Would you say you have adjusted to having had a stroke?How would you describe your quality of life?
    How do you feel on average, eg, happy, sad, adjusted to the stroke, accepted the stroke?
    What is hardest?
    Can you identify anything that would help?
    MotivationWhat keeps you going?
    What gives you a reason to keep going?
    Independence? Why?
    How do you feel about your:Your current level of social activity?
    Your current ability to look after yourself?
    You current ability to do the things you enjoy?
     AnxietyDoes worry affect you?
    How does it impact you?
    Do you think you worry more now?
     MoodHow do you feel about the future?
    Have you lost interest in things?
    Does anything cheer you up?
    Are you happy sometimes? When?
     Self imageHas your view of yourself changed?
     IndependenceWhat gives you feelings of independence?
    What does freedom mean to you?
    How does being more independent make you feel?
    What does the future look like for you?Are there things you would like to do?
    What things, people, activities are important to you?
    • View popup
    Table 2

    Participants’ Trajectory Status, Demographic Characteristics, and Stroke Subtype Classification at Study Entry

    ParticipantTrajectorySexAge, yMarital StatusCountry of OriginOxfordshire Classification
    2ResilientM84MarriedAustraliaLacunar infarct
    6ResilientM94WidowedAustraliaPartial anterior circulation infarction
    9ResilientM78MarriedAustraliaPosterior circulation infarction
    10ResilientM76Lives with partnerAustraliaPartial anterior circulation infarction
    19ResilientM56SingleAustraliaLacunar infarction
    1OngoingF50SingleAustraliaPosterior circulation infarction
    5OngoingM59WidowedAustraliaPartial anterior circulation infarction
    12OngoingF37SingleAustraliaPartial anterior circulation infarction
    17OngoingF52MarriedAustraliaPosterior circulation infarction
    20OngoingM65DivorcedAustraliaLacunar infarction
    7EmergentM65MarriedAustraliaPartial anterior circulation infarction
    13EmergentM87MarriedCzechoslovakiaPartial anterior circulation infarction
    14EmergentF82WidowedGermanyTotal anterior circulation infarction
    3RecoveredF69MarriedAustraliaPartial anterior circulation infarction
    4RecoveredM70Lives with partnerAustraliaPartial anterior circulation infarction
    8RecoveredF62MarriedAustraliaPosterior circulation infarction
    11RecoveredF62SingleAustraliaPartial anterior circulation infarction
    15RecoveredF93WidowedAustraliaPosterior circulation infarction
    16RecoveredF77WidowedAustraliaPartial anterior circulation infarction
    18RecoveredM79MarriedAustraliaPartial anterior circulation infarction
    21RecoveredF76MarriedItalyPartial anterior circulation infarction
    22RecoveredM72MarriedAustriaPartial anterior circulation infarction
    23RecoveredM62MarriedAustraliaLacunar infarction
    • F=female; M=male.

    • View popup
    Table 3

    Participants’ Trajectory Status, Disability Status, and Quantitative Mood Scores at Study Interview Points

    ParticipantTrajectorymRSa at BaselinemRSa at 12 Months (unless specified)K10 at BaselinesK10 at 3 MonthsK10 at 6 MonthsK10 at 9 MonthsK10 at 12 Months
    2Resilient3 D0 IWellWell–MildMild
    6Resilient4 D3 DWellWellWellWellWell
    9Resilient4 D4 DWellWellWellWellWell
    10Resilient1 I1 IWellWellWellWellWell
    19Resilient3 D1 IWellWellWellWellWell
    1Crisis4 D0 IWellWellWellWellWell
    5Crisis1 I0 IModerateModerate–ModerateMild
    12Crisis4 D1 IWellWellWellWellWell
    17Crisis3 D0 IWellWellWellWellWell
    20Crisis4 D1 IWellModerateSevereSevereSevere
    7Emergent4 D0 I–WellMildSevereModerate
    13Emergent4 D3 DWellMildMild––
    14Emergent3 D5 DSevereSevere–––
    3Recovered3 D1 IModerateSevere–MildMild
    4Recovered2 I0 IModerateSevereModerateMildMild
    8Recovered2 I1 IWellWellWellWellWell
    11Recovered4 D0 IWellWellWellWellWell
    15Recovered4 D4 DModerateModerateMildModerateWell
    16Recovered1 I0 IWellWellWellWellWell
    18Recovered4 D3 DSevereSevereSevereSevereModerate
    21Recovered4 D4 DSevereSevereSevereModerateWell
    22Recovered3 D1 IWellWellWellWellWell
    23Recovered4 D3 DSevereSevereSevereMildWell
    • D=dependent; I=independent; K10=Kessler-10; mRS=Modified Rankin Scale.

    • Notes: mRS categorization as follows: I = independent’ (mRS ≤2); D = dependent’ (mRS ≥3 and ≤5); K10 scoring28: well equates to “likely to be well” = 10–19; mild equates to ‘”likely to have a mild disorder” = 20–24; moderate equates to “likely to have a moderate mental disorder” = 25–29; severe equates to “likely to have a severe mental disorder” = 30–50).28

Additional Files

  • Tables
  • The Article in Brief

    Jennifer H. White , and colleagues

    Background Most stroke survivors receive ongoing care in the community after discharge from a secondary or tertiary health care setting. This study explores common disease paths or patterns of psychological distress and recovery in the 12 months after a stroke.

    What This Study Found Based on interviews with 23 recent stroke victims, researchers identify 4 distinct trajectories--resilience, ongoing mood disturbance, emergent mood disturbance, and recovery from mood disturbance. Recovery from mood disturbance is facilitated by gains in independence and self-esteem and by having an internal health locus of control.

    Implications

    • Identifying distinct trajectories of psychological morbidity may help primary care physicians develop appropriately timed methods for promoting better mental health among stroke patients.
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The Annals of Family Medicine: 10 (5)
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Trajectories of Psychological Distress After Stroke
Jennifer H. White, Parker Magin, John Attia, Jonathan Sturm, Gregory Carter, Michael Pollack
The Annals of Family Medicine Sep 2012, 10 (5) 435-442; DOI: 10.1370/afm.1374

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Trajectories of Psychological Distress After Stroke
Jennifer H. White, Parker Magin, John Attia, Jonathan Sturm, Gregory Carter, Michael Pollack
The Annals of Family Medicine Sep 2012, 10 (5) 435-442; DOI: 10.1370/afm.1374
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