Article Figures & Data
Tables
Characteristic No. (%) Characteristic No. (%) Age, y Geography 21–40 3 (9) Rural 5 (15) 41–60 12 (36) Nonrural 28 (85) 61–70 12 (36) Region 71–95 6 (18) Midwest 4 (12) Race Northeast 7 (21) African American 4 (12) South 13 (39) White 26 (79) West 9 (27) Missing 3 (9) Health condition Ethnicity prompting application Not Hispanic 29 (88) for assistance Hispanic 3 (9) Arrhythmia 1 (3) Missing 1 (3) Arthritis 10 (30) Income Asthma 2 (6) <$20,000 13 (39) Cancer 13 (39) $20,000–$40,000 15 (46) Hepatitis C 2 (6) $40,000–$60,000 4 (12) Kidney/renal disease 5 (15) Missing 1 (3) Insurance type Education Cobra 4 (12) High school 20 (61) Employer 6 (18) Some college 3 (9) Medicaid 1 (3) College graduate 6 (18) Medicare 22 (67) Graduate school 4 (12) -
Note. The number of participants covered by Medicare exceeded the number older than 65 years, suggesting that the sample includes chronically disabled individuals who were younger than 65 years.
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Additional Files
Supplemental Appendix
Supplemental Appendix. Interview Guide
Files in this Data Supplement:
- Supplemental data: Appendix - PDF file, 3 pages, 188 KB
The Article in Brief
Life Disruptions for Midlife and Older Adults With High Out-of-Pocket Health Expenditures
David Grande , and colleagues
Background American families are spending a growing amount of their personal income on health, leading them to make financial trade-offs. Little is known about the choices families make and how they make them. This study investigates the social, medical, financial, and sometimes legal disruptions from high out-of-pocket health expenses, referred to here as "life disruptions."
What This Study Found Among 33 insured patients seeking philanthropic financial assistance, all of whom face major chronic illnesses and most of whom are covered by Medicare, there is considerable anxiety, major debt problems, and disruptions of medical care because of high levels of cost sharing. Participants describe various borrowing strategies (such as credit cards), legal problems (such as debt collections), and threats to their household budgets (such as food and housing). Although participants understand their health benefits, they describe considerable anxiety about changes to those benefits that could easily disrupt carefully managed household budgets. Specifically, benefits that have large variation in financial liability from month to month (such as large deductibles or coverage gaps) impose considerable financial challenges.
Implications
- The authors urge policy makers to consider the consequences of high cost sharing for families facing strained household budgets. Continuity of benefits and month-to-month stability of financial liability are important considerations that may be undervalued in policy discussions.