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Research ArticleResearch Briefs

Trends in Patient-Perceived Shared Decision Making Among Adults in the United States, 2002–2014

David M. Levine, Bruce E. Landon and Jeffrey A. Linder
The Annals of Family Medicine November 2017, 15 (6) 552-556; DOI: https://doi.org/10.1370/afm.2132
David M. Levine
1Division of General Internal Medicine and Primary Care, Brigham and Women’s Hospital, Boston, Massachusetts
2Harvard Medical School, Boston, Massachusetts
MD, MPH, MA
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  • For correspondence: dmlevine@partners.org
Bruce E. Landon
2Harvard Medical School, Boston, Massachusetts
3Department of Health Care Policy, Harvard Medical School, Boston, Massachusetts
4Division of General Medicine and Primary Care, Beth Israel Deaconess Medical Center, Boston, Massachusetts
MD, MBA, MSc
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Jeffrey A. Linder
5Division of General Internal Medicine and Geriatrics, Northwestern University Feinberg School of Medicine, Chicago, Illinois
MD, MPH
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  • Figure 1a
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    Figure 1a

    Trends in components of shared decision making, 2002–2014.

    Note: Change between 2002 and 2014 for each question included in the SDM composite. All comparisons P <.01.

    Error bars represent 95% CIs (for verbatim questions, see Supplemental Appendix, available at http://www.AnnFamMed.org/content/15/6/552/suppl/DC1/).

  • Figure 1b
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    Figure 1b

    Trend in shared decision-making composite score, 2002–2014.

    SDM=shared decision making.

    a Number of points out of 7.

    Note: Change from 2002 to 2014 in the SDM composite score. Comparison of 2002 to 2014: P <.01.

    Error bars represent 95% CIs (for verbatim questions, see Supplemental Appendix, available at http://www.AnnFamMed.org/content/15/6/552/suppl/DC1/).

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    Table 1

    Characteristics of the Medical Expenditure Panel Survey Participants and Independent Predictors of Shared Decision Making, 2002–2014

    CharacteristicMean Value (95% CI) or % (95% CI)aAssociation With SDM Composite Score,b Points
    2002 (n=12,138)2014 (n=9,049)
    SDM composite score, points4.4 (4.3–4.4)5.0 (4.9–5.1)n/a
    Age, y49.3 (48.8–49.8)51.8 (51.1–52.5)0.01c
    Femaled59.6 (58.8–60.4)59.1 (58–60.1)0.06c
    Race/ethnicity
     Non-Hispanic white76.3 (74.8–77.8)71.7 (69.4–74.0)Referent
     Hispanic8.5 (7.5–9.5)10.8 (9.3–12.3)−0.03
     Non-Hispanic black10.2 (9.2–11.2)10.8 (9.4–12.1)0.33c
     Non-Hispanic Asian3.0 (2.4–3.6)4.0 (3.1–5.0)−0.29c
     Non-Hispanic other or multiple2.0 (1.5–2.5)2.7 (2.0–3.4)0.08
    Census region
     Northeast21.3 (19.6–23.1)18.3 (16.5–20.0)Referent
     Midwest24.1 (22.1–26.0)23.0 (21.2–24.8)0
     South34.3 (32.1–36.5)37.2 (35.0–39.5)−0.01
     West20.3 (18.5–22.0)21.5 (19.8–23.1)−0.21c
    Partner status
     Married/partnered60.9 (59.5–62.3)57.6 (55.8–59.4)Referent
     Widowed8.8 (8.1–9.4)8.3 (7.5–9.1)0.10c
     Divorced/separated12.8 (12.0–13.6)14.0 (12.9–15.0)0.05c
     Never married17.6 (16.7–18.5)20.2 (18.9–21.4)−0.03
    Education
     <High school19.4 (18.3–20.4)11.2 (10.3–12.1)Referent
     High school/GED/some college54.1 (52.9–55.2)57.5 (55.9–59.2)−0.09c
     Bachelor’s degree15.8 (14.9–16.8)18.8 (17.6–20.0)−0.19c
     >Bachelor’s degree10.7 (9.9–11.5)12.5 (11.3–13.6)−0.26c
    Health insurance coverage
     Any private77.7 (76.4–79.0)71.9 (70.2–73.6)Referent
     Public only16.2 (15.1–17.3)23.6 (22.1–25.1)0.04
     Uninsured6.1 (5.5–6.8)4.5 (3.8–5.1)−0.17c
    Perceived health status
     Excellent21.2 (20.2–22.3)21.2 (19.9–22.5)Referent
     Very good32.8 (31.7–34.0)32.2 (30.7–33.6)−0.32c
     Good28.9 (27.9–30.0)28.9 (27.6–30.3)−0.41c
     Fair11.9 (11.2–12.7)13.3 (12.3–14.2)−0.33c
     Poor5.1 (4.6–5.6)4.4 (3.9–5.0)−0.15c
    Usual source of care is same race/ethnicityd41.1 (39.2–43.0)36.3 (34.0–38.6)0.24c
    Employedd66.5 (65.2–67.8)63.6 (62.0–65.2)−0.09c
    Currently smoked19.3 (18.3–20.2)13.1 (12.1–14.1)0.02
    Need help with ADLe3.9 (3.4–4.3)4.4 (3.8–4.9)0.20c
    Need help with iADLe7.0 (6.4–7.7)7.5 (6.8–8.3)0.13c
    SF-12 PCS scoref47.0 (46.7–47.3)47.1 (46.7–47.5)0.03c
    SF-12 MCS scoref50.3 (50.1–50.6)51.1 (50.8–51.4)0.04c
    Body mass index, kg/m227.4 (27.3–27.6)28.6 (28.4–28.8)0.01c
    Family income as % of poverty line
     Poor/negative (<100%)9.8 (9.0–10.6)11.5 (10.4–12.6)Referent
     Near poor (100% to 124%)3.6 (3.2–4.0)4.4 (3.9–5.0)0
     Low income (125% to 199%)12.1 (11.3–12.9)11.4 (10.5–12.4)0
     Middle income (200% to 399%)29.5 (28.2–30.8)27.4 (25.9–29.0)−0.06c
     High income (≥400%)45.0 (43.3–46.6)45.2 (43.2–47.3)−0.01
    Chronic diseased
     Hypertension25.8 (24.7–26.9)38.7 (36.9–40.5)0.03
     Hyperlipidemia14.2 (13.3–15.0)31.6 (30.1–33.1)−0.04
     Depression11.1 (10.4–11.8)14.7 (13.7–15.7)0.13c
     Diabetes9.9 (9.2–10.6)16.4 (15.4–17.5)0.10c
     COPD6.5 (6.0–7.1)9.0 (8.1–10.0)−0.01
     CAD/MI6.8 (6.2–7.3)10.1 (9.3–11.0)0.07c
     Cancerg6.5 (5.9–7.1)9.7 (8.9–10.5)0.01
     Asthma6.0 (5.5–6.4)8.9 (8.2–9.7)−0.05
     Arthritis2.4 (2.1–2.7)13.6 (12.5–14.8)−0.02
    Number of chronic diseasesh
     044.9 (43.7–46.1)34.0 (32.3–35.6)Referent
     127.8 (26.9–28.7)21.4 (20.3–22.5)0.07c
     215.2 (14.4–15.9)17.0 (15.9–18.1)0.10c
     ≥312.2 (11.3–13.1)27.7 (26.3–29.1)0.11
    Total annual health care expenditure, $4,677.6 (4,502.3–4,852.8)7,950.2 (7,501.6–8,398.8)0
    Office visits, No.8.4 (8.1–8.7)9.6 (9.2–10.0)0
    • ADL = activities of daily living; CAD = coronary artery disease; COPD = chronic obstructive pulmonary disease; GED = General Educational Development Test; iADL = instrumental activities of daily living; MCS = mental component summary; MI = myocardial infarction; n/a = not applicable; PCS = physical component summary; SDM = shared decision making; SF-12 = 12-item Short Form Health Survey.

    • ↵a Percentages may not sum to 100 because of rounding.

    • ↵b Multivariate linear regression of SDM_Composite = β0 + β1Year + β2Covariates..., where Year is points per year and Covariates are all of the variables in the Table. The unit for the association is SDM composite score points, out of 7 points. For example, a black participant’s SDM composite score had 0.34 additional points compared with a white participant’s, all else constant. For year, coefficient is 0.04 points per year (P <.01).

    • ↵c P <.05.

    • ↵d Referent is the converse.

    • ↵e Three-part screening question to determine if respondent required assistance with ADLs or iADLs.

    • ↵f Possible scores range from 0 to 100. Higher scores represent better self-reported health.

    • ↵g All except nonmelanoma skin cancer.

    • ↵h Out of the 20 conditions considered chronic by the Health and Human Services Office of the Assistant Secretary of Health.

Additional Files

  • Figures
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  • Supplemental Appendix

    Supplemental Appendix

    Files in this Data Supplement:

    • Supplemental data: Appendix - PDF file
  • The Article in Brief

    Trends in Patient-Perceived Shared Decision Making Among Adults in the United States, 2002-2014

    David M. Levine , and colleagues

    Background This study explores how shared medical decision-making between patient and clinician has changed over time.

    What This Study Found Between 2002 and 2014, reports of shared decision making increased significantly among adult Americans. Analyses of data from a nationally representative survey found that the mean shared decision making composite increased from 4.4 to 5. In multivariable modeling, blacks reported more shared decision making, while Asians, those without insurance, and those in poor health reported less. When a respondent and their clinician were of the same race/ethnicity, the respondent reported improved shared decision making.

    Implications

    • The authors suggest that efforts to improve shared decision-making target Americans who do not share race/ethnicity with their clinician and those with poor perceived health.
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The Annals of Family Medicine: 15 (6)
The Annals of Family Medicine: 15 (6)
Vol. 15, Issue 6
November/December 2017
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Trends in Patient-Perceived Shared Decision Making Among Adults in the United States, 2002–2014
David M. Levine, Bruce E. Landon, Jeffrey A. Linder
The Annals of Family Medicine Nov 2017, 15 (6) 552-556; DOI: 10.1370/afm.2132

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Trends in Patient-Perceived Shared Decision Making Among Adults in the United States, 2002–2014
David M. Levine, Bruce E. Landon, Jeffrey A. Linder
The Annals of Family Medicine Nov 2017, 15 (6) 552-556; DOI: 10.1370/afm.2132
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