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Research ArticleResearch Brief

Perceptions of Primary Care Notes by Patients With Mental Health Diagnoses

Jared W. Klein, Sue Peacock, Judith I. Tsui, Stephen F. O’Neill, Catherine M. DesRoches and Joann G. Elmore
The Annals of Family Medicine July 2018, 16 (4) 343-345; DOI: https://doi.org/10.1370/afm.2287
Jared W. Klein
1Department of Medicine, University of Washington School of Medicine, Seattle, Washington
MD, MPH
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Sue Peacock
1Department of Medicine, University of Washington School of Medicine, Seattle, Washington
MS
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Judith I. Tsui
1Department of Medicine, University of Washington School of Medicine, Seattle, Washington
MD, MPH
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Stephen F. O’Neill
2Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, Massachusetts
BCD, JD
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Catherine M. DesRoches
2Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, Massachusetts
PhD
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Joann G. Elmore
3David Geffen School of Medicine at University of California Los Angeles, Los Angeles, California
MD, MPH
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  • For correspondence: jelmore@mednet.ucla.edu
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Tables

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    Table 1

    Patient Characteristics

    CharacteristicaMental Health Diagnosisb
    (n = 400)
    No. (%)
    No Mental Health Diagnosis
    (n = 2,134)
    No. (%)
    P Valuec
    Age.48
     <50 y133 (33)671 (31)
     ≥50 y267 (67)1,462 (69)
    Sex.011
     Male91 (31)641 (39)
     Female203 (69)1014 (61)
    Education<.001
     High school/GED or less30 (8)109 (5)
     Some college106 (27)370 (18)
     College graduate90 (23)473 (23)
     Post college162 (42)1,147 (55)
    Employment<.001
     Not employed46 (12)106 (5)
     Retired69 (19)317 (16)
     Employed/self-employed/homemaker257 (69)1,608 (79)
    Race.005
     Black23 (6)59 (3)
     Multiracial/other25 (7)167 (8)
     White335 (87)1,829 (89)
    Specific mental health diagnosisd
     Depression259 (65)
     Anxiety disorder180 (45)
     Stress disorders47 (12)
     Bipolar disorder23 (6)
     Psychotic disorder7 (2)
    • GED = general equivalency diploma.

    • ↵a Missing data occur in all patient characteristics.

    • ↵b Mental health diagnosis is determined by International Classification of Diseases, Ninth Revision (ICD-9) codes. All diagnoses identified before the survey.

    • ↵c P value for χ2 statistic.

    • ↵d Diagnoses are not mutually exclusive.

    • View popup
    Table 2

    Comparison of Patients With and Without a Mental Health Diagnosis Who Agree/Somewhat Agree With Perception Statements Regarding OpenNotes

    PerceptionMental Health Diagnosis (n = 400)
    No. (%)
    No Mental Health Diagnosis (n = 2,134)
    No. (%)
    P Valueb
    Positive
     I do better with taking my medications as prescribed236 (74.0)1,017 (67.6).025
     I take better care of myself296 (83.6)1,471 (81.0).24
     I feel more in control of my health care336 (92.3)1,789 (91.3).54
     I understand my health and medical conditions better341 (92.9)1,777 (91.7).43
     I am better prepared for visits298 (87.6)1,549 (85.0).20
     I remember the plan for my care better346 (94.8)1,763 (91.6).037
    Negative
     I worry more30 (8.2)104 (5.3).029
     The notes are more confusing than helpful5 (1.4)49 (2.5).19
     I am concerned about my privacy152 (41.2)746 (38.5).32
    • Note: Mental health diagnosis determined by International Classification of Diseases, Ninth Revision (ICD-9) codes from clinic visits during period of note availability. All diagnoses identified before the post survey.

    • a P value from χ2 statistic.

Additional Files

  • Tables
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    Supplemental Appendix

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    • Supplemental data: Appendix - PDF file
  • The Article in Brief

    Perceptions of Primary Care Notes by Patients With Mental Health Diagnoses

    Joann G. Elmore , and colleagues

    Background A significant proportion of mental health care is delivered in the primary care setting, where medical records, including clinical notes, are increasingly available to patients via secure online portals. However, there are lingering concerns about sharing clinic notes with patients with mental health diagnoses. This study compares perceptions of patients with and without a mental health diagnosis regarding access to primary care clinic notes.

    What This Study Found Primary care patients with mental health diagnoses are as enthusiastic about the utility of viewing their doctors' notes as other patients. A survey of 2,534 patients (400 with mental health diagnoses and 2,134 without) who had read at least one online doctor's note found that patients saw similar benefits in access to the notes, regardless of mental health status. Ninety-two percent of patients in both groups reported that access to doctors' notes would help them feel in control of their health care and help them understand their health and medical conditions. High percentages of both groups also reported they would take better care of themselves, be more prepared for doctor visits, and would more likely take medications as prescribed as a result of access to doctors' notes.

    Implications

    • In spite of lingering concerns about whether patients with mental illness should have access to their online medical records, the authors suggest that providing such access to all patients might contribute to greater adherence and trust and could potentially help destigmatize mental illness.
    • The authors call for a fuller understanding of risks and benefits of online note access in patients with mental health conditions and interventions to mitigate potential adverse effects of this new tool.
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The Annals of Family Medicine: 16 (4)
The Annals of Family Medicine: 16 (4)
Vol. 16, Issue 4
July/August 2018
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Perceptions of Primary Care Notes by Patients With Mental Health Diagnoses
Jared W. Klein, Sue Peacock, Judith I. Tsui, Stephen F. O’Neill, Catherine M. DesRoches, Joann G. Elmore
The Annals of Family Medicine Jul 2018, 16 (4) 343-345; DOI: 10.1370/afm.2287

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Perceptions of Primary Care Notes by Patients With Mental Health Diagnoses
Jared W. Klein, Sue Peacock, Judith I. Tsui, Stephen F. O’Neill, Catherine M. DesRoches, Joann G. Elmore
The Annals of Family Medicine Jul 2018, 16 (4) 343-345; DOI: 10.1370/afm.2287
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