Article Figures & Data
Tables
Characteristica Mental Health Diagnosisb
(n = 400)
No. (%)No Mental Health Diagnosis
(n = 2,134)
No. (%)P Valuec Age .48 <50 y 133 (33) 671 (31) ≥50 y 267 (67) 1,462 (69) Sex .011 Male 91 (31) 641 (39) Female 203 (69) 1014 (61) Education <.001 High school/GED or less 30 (8) 109 (5) Some college 106 (27) 370 (18) College graduate 90 (23) 473 (23) Post college 162 (42) 1,147 (55) Employment <.001 Not employed 46 (12) 106 (5) Retired 69 (19) 317 (16) Employed/self-employed/homemaker 257 (69) 1,608 (79) Race .005 Black 23 (6) 59 (3) Multiracial/other 25 (7) 167 (8) White 335 (87) 1,829 (89) Specific mental health diagnosisd Depression 259 (65) Anxiety disorder 180 (45) Stress disorders 47 (12) Bipolar disorder 23 (6) Psychotic disorder 7 (2) GED = general equivalency diploma.
↵a Missing data occur in all patient characteristics.
↵b Mental health diagnosis is determined by International Classification of Diseases, Ninth Revision (ICD-9) codes. All diagnoses identified before the survey.
↵c P value for χ2 statistic.
↵d Diagnoses are not mutually exclusive.
- Table 2
Comparison of Patients With and Without a Mental Health Diagnosis Who Agree/Somewhat Agree With Perception Statements Regarding OpenNotes
Perception Mental Health Diagnosis (n = 400)
No. (%)No Mental Health Diagnosis (n = 2,134)
No. (%)P Valueb Positive I do better with taking my medications as prescribed 236 (74.0) 1,017 (67.6) .025 I take better care of myself 296 (83.6) 1,471 (81.0) .24 I feel more in control of my health care 336 (92.3) 1,789 (91.3) .54 I understand my health and medical conditions better 341 (92.9) 1,777 (91.7) .43 I am better prepared for visits 298 (87.6) 1,549 (85.0) .20 I remember the plan for my care better 346 (94.8) 1,763 (91.6) .037 Negative I worry more 30 (8.2) 104 (5.3) .029 The notes are more confusing than helpful 5 (1.4) 49 (2.5) .19 I am concerned about my privacy 152 (41.2) 746 (38.5) .32 Note: Mental health diagnosis determined by International Classification of Diseases, Ninth Revision (ICD-9) codes from clinic visits during period of note availability. All diagnoses identified before the post survey.
a P value from χ2 statistic.
Additional Files
Supplemental Appendix
Supplemental Appendix
Files in this Data Supplement:
- Supplemental data: Appendix - PDF file
The Article in Brief
Perceptions of Primary Care Notes by Patients With Mental Health Diagnoses
Joann G. Elmore , and colleagues
Background A significant proportion of mental health care is delivered in the primary care setting, where medical records, including clinical notes, are increasingly available to patients via secure online portals. However, there are lingering concerns about sharing clinic notes with patients with mental health diagnoses. This study compares perceptions of patients with and without a mental health diagnosis regarding access to primary care clinic notes.
What This Study Found Primary care patients with mental health diagnoses are as enthusiastic about the utility of viewing their doctors' notes as other patients. A survey of 2,534 patients (400 with mental health diagnoses and 2,134 without) who had read at least one online doctor's note found that patients saw similar benefits in access to the notes, regardless of mental health status. Ninety-two percent of patients in both groups reported that access to doctors' notes would help them feel in control of their health care and help them understand their health and medical conditions. High percentages of both groups also reported they would take better care of themselves, be more prepared for doctor visits, and would more likely take medications as prescribed as a result of access to doctors' notes.
Implications
- In spite of lingering concerns about whether patients with mental illness should have access to their online medical records, the authors suggest that providing such access to all patients might contribute to greater adherence and trust and could potentially help destigmatize mental illness.
- The authors call for a fuller understanding of risks and benefits of online note access in patients with mental health conditions and interventions to mitigate potential adverse effects of this new tool.